Genetic Discrimination Observatory

Description

The goal of the Genetic Discrimination Observatory (GDO) is to create a single communication platform to collectively improve the prevention of genetic discrimination worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to the information and tools needed to effectively counter genetic discrimination. Specific aspects of the GDO include a secure management system, integrated registration for participants and a database of projects, new developments, and events. Our overall approach is guided by four fundamental principles:

  • Consultations with all key stakeholders to determine the tools, elements and content to be prioritized in the inclusion on the platform;
  • Content reviewed for relevance and quality by research assistants prior to inclusion on the site;
  • A summary of the scientific material included in the GDO; and
  • Transparency in the governance of the GDO to avoid conflicts of interest.