NEWS

"More education on the benefits of genetic testing could accelerate its potential" by University of Queensland

"A study of Queensland health consumers has found most have relatively low levels of understanding and awareness of genetic testing, despite its significant potential to improve health outcomes. "... Read more

"California Governor vetoes bill to establish the Genetic Information Privacy Act " by Hogan Lovells

"California’s “Genetic Information Privacy Act” (SB 980), vetoed on September 25, 2020 by Governor Gavin Newsom, would have established obligations for direct-to-consumer (“DTC”) genetic testing companies and others that collect or process genetic information. "... Read more

"Reference re Genetic Non-Discrimination Act" Supreme Court of Canada

"Parliament had the power to make it a crime to force someone to get genetic testing or reveal their test results, the Supreme Court has ruled."... Read more

"ABI releases Code on Genetic Testing report" by Adam Saville

"The report provides a transparent overview of the compliance exercise carried out by the Association of British Insurers (ABI) to assess how the Code is operating, as well as an overview of the key developments in insurance over the last year..."... Read more

"Strategic Development of Genomic Medicine in Hong Kong" Steering Committee on Genomic Medicine of the Hong Kong government

"The rapid advancement in genomic medicine has presented huge potential in accurate diagnosis, personalised treatment and efficient surveillance of diseases"... Read more

"Hong Kong lays out blueprint for future of genomic medicine " by Elizabeth Cheung

"Steering committee gives eight recommendations on way forward for field that is becoming a critical aspect of health care. It calls for better supervision of tests and says people should not be required to submit test results to insurers to obtain coverage."... Read more

"The Answer to a COVID-19 Vaccine May Lie in Our Genes, But..." by Ifeoma Ajunwa, Forrest Briscoe

"Biotechs and pharma want to protect patients without triggering immune system havoc"... Read more

"Genetic Discrimination: The Genetic Information Nondiscrimination Act's Impact on Practice and Research " by Meghan Underhill-Blazery, Margaret R Klehm

"The Genetic Information Nondiscrimination Act of 2008 (GINA) provides federal safeguards to prohibit employer or insurance discrimination based on personal or familial genetic information or conditions."... Read more

"BEYOND LOCAL: New DNA test that reveals 'true age' has promise, but ethical pitfalls" The Conversation

"Epigenetic clocks are a fascinating new technology, but some potential applications are controversial "... Read more

"Establishing the International Genetic Discrimination Observatory" by Yann Joly, Gratien Dalpé & al.

"Genetic discrimination is one of the most pervasive challenges resulting from research and development in human genetics. To collaboratively study and prevent this ethical issue, we established an international Genetic Discrimination Observatory"... Read more

"Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination" by Yann Joly, Charles Dupras, Miriam Pinkesz, Stacey A. Tovino, and Mark A. Rothstein

"Genetic discrimination (GD) is consistently associated with research and innovation in genetics. Over recent decades, countries around the world have attempted to address GD using various policy measures."... Read more

"Life insurers should not get your DNA" by Chris Sprowls

"Life insurers should be banned from using genetic testing results to determine rates or coverage, the next House speaker writes."... Read more

"A judge said police can search the DNA of 1 million Americans without their consent. What’s next?" by Jocelyn kaiser

"For the first time, a state judge has forced a public genealogy site, GEDmatch, to allow police to search its entire database of DNA profiles."... Read more

"Genetic privacy legislation goes to the SCC" by Dale Smith

"Legislation to protect Canadians' genetic information is coming before the Supreme Court of Canada. The top court is hearing the case today after the Quebec Court of Appeal found that part of the Act uses the criminal law powers to outlaw genetic discrimination is ultra vires."... Read more

"U.S. Government Plans to Collect DNA From Detained Immigrants " by Caitlin Dickerson

"The Department of Homeland Security said it would begin testing on hundreds of thousands of immigrants in federal detention facilities."... Read more

Canadian Journal of Bioethics "Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non- Discrimination Act (GNDA) " by Yann Joly, Gratien Dalpé, Miriam Pinkesz

"In this commentary, we critically review the Quebec Court of Appeal's reference decision to the effect that the Genetic Non-Discrimination Act (GNDA) is unconstitutional"... Read more

"New federal rules limit police searches of family tree DNA databases" by Jocelyn kaiser

"An ancestry database helped police identify Joseph DeAngelo, who faces charges as the Golden State Killer."... Read more

"Will genetic screening of athletes change sport as we know it?" by G. Gregory Haff

"There's little evidence that performance capacity can be predicted based on genes, writes Gregory Haff from Australia's Edith Cowan University."... Read more

"23 and who? Your DNA test results and the law" by Briana Bierschbach

"A journalist visits a website offering DNA testing. Companies that sell DNA tests have hired lobbyists as Minnesota legislators eye regulating who has access to the results."... Read more

"Alzheimer's disease biomarkers: another tool for FAA pilot screening?" by Matthew W Lawrence and Jalayne J Arias

"Research advancements to improve the accuracy of diagnosing Alzheimer's disease (AD) have altered clinicians and researchers' understanding of the disease process. The discovery of amyloid and tau biomarkers as measures of disease pathology supports early identification of disease risk that precedes symptom onset."... Read more

"DNA testing service Vitagene exposed thousands of customer records online for years" by Nico Grant

"DNA testing service Vitagene Inc. left thousands of client health reports exposed online for years, the kind of incident that privacy advocates have warned about as gene testing has become increasingly popular."... Read more

"DNA-testing firms are lobbying to limit your right to genetic privacy" by David Lazarus

"Home DNA testing can be fun. I’ve done it for myself and for my dog. One of us unexpectedly turned out to be 3.1% Italian. The other is mostly Saint Bernard."... Read more

"Discrimination on genetic testing by life insurers ends" by John Collett

"Life insurers are no longer allowed to require applicants for insurance to disclose the results of any genetic tests they may have had after the Financial Services Council, which represents all life insurers operating in Australia, brokered a ban on the practice this week"... Read more

"The genetic-data dystopia we may face" by K.N.C.

"A scene from a play and interview with Ella Road, the author of "The Phlebotomist"... Read more

"Japan's insurance industry takes steps to stop genetic discrimination" by Logan B.

"The Japanese industry is preparing guidelines to make sure insurers can't collect customer DNA. The insurance industry in Japan is getting ready to create guidelines that would stop genetic discrimination by insurers in the country"... Read more

"The questionable ethics of expanding forensic DNA testing" by Benjamin Berkman

"The use of genetic information collected by private companies in criminal investigations raises a number of issues about transparency and privacy"... Read more

"Rwanda sparks human rights concerns in proposing world's first nationwide DNA database" by Wil Crisp

"Rwanda has proposed the world's first country-wide DNA database, a project that will involve collecting samples from all of the country's 12 million citizens in an effort to crack down on crime".... Read more

"FSC to enact binding standard on genetic testing" By Elizabeth McArthur

"The life insurance industry is pushing ahead with the rollout of new rules on genetic testing despite a delay"... Read more

"Vers une discrimination génétique au Canada ?" Par Yann Joly et Gratien Dalpé

"Deux juristes se penchent sur la récente décision de la Cour d'Appel relativement à la Loi sur la Non-Discrimination Génétique (LNDG)"... Read more

"Genetic characteristics: A developing ground of discrimination" By Rachel Devon

"Employers should be mindful of a newly recognized form of discrimination that has captured the attention of legislators and the Canadian public: genetic discrimination"... Read more

"Draft approved on use of patients' gene info amid discrimination fears" Japanese original by Norikazu Chiba

"A suprapartisan group of lawmakers on March 13 approved the draft outline of a bill to promote proper use of patients' gene information in disease treatment and prevention with a brake on genetic discrimination"... Read more

"Les assureurs veulent à tout prix mettre la main sur votre profil génétique" par Jean-Yves Nau

Pour l’heure, en France, la loi protège l'intimité génétique de chacun. Mais la Suisse est sur le point de craquer. Et demain, les assurances trieront-elles leurs clients en fonction de leurs gènes ?.... Read more

"Statement - More needs to be done to protect people from genetic discrimination in Canada" by Marie-Claude Landry, Chief Commissioner of the Canadian Human Rights Commission

Following the Quebec Court of Appeal's opinion concerning the constitutionality of the Genetic Non-Discrimination Act, Marie-Claude Landry, Chief Commissioner of the Canadian Human Rights Commission, issues the following statement: ... Read more

"La discrimination génétique peut aller de l’avant" par Hélène Buzzetti

La loi fédérale interdisant la discrimination génétique est sur le respirateur artificiel. La Cour d’appel du Québec l’a jugée invalide juste avant Noël au motif qu’il revenait aux provinces et non au gouvernement fédéral de légiférer en la matière.... Read more

"Genetic Discrimination: A Reality for Both Residents and Immigrants" by Victor Depois

Genetic Tests Used by Both Insurers and Immigration Officers. Montreal resident Harriet Smith* was in her mid-thirties in 2013 when she got tested for BRCA1 gene mutation for the first time. A pseudonym has been used to protect her employment opportunities and her children from accessing insurance... Read more

"Deportations on the back of consumer genetic tests worry scientists" by Brian Oewns

Canada's border enforcement agency appears to be using genetic tests and DNA ancestry sites to determine country of origin for would-be deportees. Geneticists in Canada are raising concerns about the apparent use of direct-to-consumer genetic tests and ancestry websites by the Canada Border Services Agency (CBSA) to help determine the country of origin for people it wants to deport... Read more

"La discrimination génétique, un phénomène répandu ou pas ?" par Hélène Buzzetti

La discrimination génétique est-elle très répandue ? Les Québécois la craignent-ils et connaissent-ils la nouvelle loi — contestée — visant à l’enrayer ? Ce sont là les questions auxquelles tente de répondre le professeur montréalais Yann Joly en lançant une consultation en ligne sur le sujet... Read more

"L'utilisation des données génétiques promet d'âpres débats au National" par Camille Degott/kkub

La récolte et l'utilisation des données génétiques se trouvent au coeur de la révision de la Loi fédérale sur l’analyse génétique humaine, en débat dès lundi au Conseil national... Read more