The Genetic Discrimination Observatory aims to better understand discriminatory events and compile information on the incidence and consequences of genetic discrimination in different countries to enable policymakers, genetic service providers, patient groups, and industry to address this issue in a manner that is both ethical and informed by evidence.
If you have been treated differently, negatively, or unfairly profiled based on your actual (e.g. genetic tests) or presumed genetic characteristics (e.g. family history), you are invited to share your story with the Observatory.
Your identity will be kept confidential.
This project has received ethics approval by the Institutional Review Board of the Faculty of Medicine at McGill University, Canada. At this moment, we can only accept cases from Canada and the United States. However, we are in the process of obtaining ethics approval for other countries.