"Since the 1990s, insurance has been the primary field focused on the social disadvantages of using genetic test results because of the concerns related to adverse selection. Although life insurance is popular in Japan, Japan does not currently have any regulations on the use of genetic information and insurers have largely kept silent for decades."... Lire la suite
"New $3.3 million NIH-funded study will examine ethical, policy implications of workplace genomic testing"... Lire la suite
"The US federal Genetic Information Nondiscrimination Act (GINA) protects individuals against much health insurance and employment genetic discrimination, but by design does not protect in other realms."... Lire la suite
"A study of Queensland health consumers has found most have relatively low levels of understanding and awareness of genetic testing, despite its significant potential to improve health outcomes. "... Lire la suite
"The Trump Administration published Proposed Rules in the Federal Register on September 11, 2020. Taken together, the proposed rules would radically change and infringe upon the privacy of immigrants and their U.S. citizen family members, subjecting them to unnecessary surveillance that will lead to further discrimination of immigrants. CLASP firmly opposes the proposed rules in their entirety and submitted these comments on October 13, 2020 calling on USCIS in DHS to withdraw them."... Lire la suite
"California’s “Genetic Information Privacy Act” (SB 980), vetoed on September 25, 2020 by Governor Gavin Newsom, would have established obligations for direct-to-consumer (“DTC”) genetic testing companies and others that collect or process genetic information. "... Lire la suite
"Along with the potential for breakthroughs in care and prevention, the search for genetic mechanisms underlying the spread and severity of coronavirus disease 2019 (COVID-19) introduces the risk of discrimination against those found to have markers for susceptibility. We propose new legal protections to mitigate gaps in protections under existing laws."... Lire la suite
"Parliament had the power to make it a crime to force someone to get genetic testing or reveal their test results, the Supreme Court has ruled."... Lire la suite
"The report provides a transparent overview of the compliance exercise carried out by the Association of British Insurers (ABI) to assess how the Code is operating, as well as an overview of the key developments in insurance over the last year..."... Lire la suite
"The rapid advancement in genomic medicine has presented huge potential in accurate diagnosis, personalised treatment and efficient surveillance of diseases"... Lire la suite
"Steering committee gives eight recommendations on way forward for field that is becoming a critical aspect of health care. It calls for better supervision of tests and says people should not be required to submit test results to insurers to obtain coverage."... Lire la suite
"Biotechs and pharma want to protect patients without triggering immune system havoc"... Lire la suite
"The Genetic Information Nondiscrimination Act of 2008 (GINA) provides federal safeguards to prohibit employer or insurance discrimination based on personal or familial genetic information or conditions."... Lire la suite
"Epigenetic clocks are a fascinating new technology, but some potential applications are controversial "... Lire la suite
"Genetic discrimination is one of the most pervasive challenges resulting from research and development in human genetics. To collaboratively study and prevent this ethical issue, we established an international Genetic Discrimination Observatory"... Lire la suite
"Genetic discrimination (GD) is consistently associated with research and innovation in genetics. Over recent decades, countries around the world have attempted to address GD using various policy measures."... Lire la suite
"Life insurers should be banned from using genetic testing results to determine rates or coverage, the next House speaker writes."... Lire la suite
"For the first time, a state judge has forced a public genealogy site, GEDmatch, to allow police to search its entire database of DNA profiles."... Lire la suite
"Legislation to protect Canadians' genetic information is coming before the Supreme Court of Canada. The top court is hearing the case today after the Quebec Court of Appeal found that part of the Act uses the criminal law powers to outlaw genetic discrimination is ultra vires."... Lire la suite
"The Department of Homeland Security said it would begin testing on hundreds of thousands of immigrants in federal detention facilities."... Lire la suite
"In this commentary, we critically review the Quebec Court of Appeal's reference decision to the effect that the Genetic Non-Discrimination Act (GNDA) is unconstitutional"... Lire la suite
"An ancestry database helped police identify Joseph DeAngelo, who faces charges as the Golden State Killer."... Lire la suite
"There's little evidence that performance capacity can be predicted based on genes, writes Gregory Haff from Australia's Edith Cowan University."... Lire la suite
"A journalist visits a website offering DNA testing. Companies that sell DNA tests have hired lobbyists as Minnesota legislators eye regulating who has access to the results."... Lire la suite
"Research advancements to improve the accuracy of diagnosing Alzheimer's disease (AD) have altered clinicians and researchers' understanding of the disease process. The discovery of amyloid and tau biomarkers as measures of disease pathology supports early identification of disease risk that precedes symptom onset."... Lire la suite
"DNA testing service Vitagene Inc. left thousands of client health reports exposed online for years, the kind of incident that privacy advocates have warned about as gene testing has become increasingly popular."... Lire la suite
"Home DNA testing can be fun. I’ve done it for myself and for my dog. One of us unexpectedly turned out to be 3.1% Italian. The other is mostly Saint Bernard."... Lire la suite
"Life insurers are no longer allowed to require applicants for insurance to disclose the results of any genetic tests they may have had after the Financial Services Council, which represents all life insurers operating in Australia, brokered a ban on the practice this week"... Lire la suite
"A scene from a play and interview with Ella Road, the author of "The Phlebotomist"... Lire la suite
"The Japanese industry is preparing guidelines to make sure insurers can't collect customer DNA. The insurance industry in Japan is getting ready to create guidelines that would stop genetic discrimination by insurers in the country"... Lire la suite
"The use of genetic information collected by private companies in criminal investigations raises a number of issues about transparency and privacy"... Lire la suite
"Rwanda has proposed the world's first country-wide DNA database, a project that will involve collecting samples from all of the country's 12 million citizens in an effort to crack down on crime".... Lire la suite
"The life insurance industry is pushing ahead with the rollout of new rules on genetic testing despite a delay"... Lire la suite
"Deux juristes se penchent sur la récente décision de la Cour d'Appel relativement à la Loi sur la Non-Discrimination Génétique (LNDG)"... Lire la suite
"Employers should be mindful of a newly recognized form of discrimination that has captured the attention of legislators and the Canadian public: genetic discrimination"... Lire la suite
"A suprapartisan group of lawmakers on March 13 approved the draft outline of a bill to promote proper use of patients' gene information in disease treatment and prevention with a brake on genetic discrimination"... Lire la suite
Pour l’heure, en France, la loi protège l'intimité génétique de chacun. Mais la Suisse est sur le point de craquer. Et demain, les assurances trieront-elles leurs clients en fonction de leurs gènes ?.... Lire la suite
Following the Quebec Court of Appeal's opinion concerning the constitutionality of the Genetic Non-Discrimination Act, Marie-Claude Landry, Chief Commissioner of the Canadian Human Rights Commission, issues the following statement: ... Lire la suite
La loi fédérale interdisant la discrimination génétique est sur le respirateur artificiel. La Cour d’appel du Québec l’a jugée invalide juste avant Noël au motif qu’il revenait aux provinces et non au gouvernement fédéral de légiférer en la matière.... Lire la suite
Genetic Tests Used by Both Insurers and Immigration Officers. Montreal resident Harriet Smith* was in her mid-thirties in 2013 when she got tested for BRCA1 gene mutation for the first time. A pseudonym has been used to protect her employment opportunities and her children from accessing insurance... Lire la suite
Canada's border enforcement agency appears to be using genetic tests and DNA ancestry sites to determine country of origin for would-be deportees. Geneticists in Canada are raising concerns about the apparent use of direct-to-consumer genetic tests and ancestry websites by the Canada Border Services Agency (CBSA) to help determine the country of origin for people it wants to deport... Lire la suite
La discrimination génétique est-elle très répandue ? Les Québécois la craignent-ils et connaissent-ils la nouvelle loi — contestée — visant à l’enrayer ? Ce sont là les questions auxquelles tente de répondre le professeur montréalais Yann Joly en lançant une consultation en ligne sur le sujet... Lire la suite
La récolte et l'utilisation des données génétiques se trouvent au coeur de la révision de la Loi fédérale sur l’analyse génétique humaine, en débat dès lundi au Conseil national... Lire la suite