| Référence intégrale |
(Référence écourtée)
Pays |
Texte intégral |
| Alper J, Geller L, Barash C, Billings P, Laden V, Natowicz M: Genetic discrimination and screening for hemochromatosis. J Public Health Policy. 1994, 15: 345-358. 10.2307/3342910. |
(Alper et al 1994)
États-Unis
|
Consulter |
| Apse KA, Biesecker BB, Giardiello FM, Fuller BP, Bernhardt BA: Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients. Genet Med. 2004, 6: 510-516. |
(Apse et al 2004)
États-Unis
|
Consulter |
| Armstrong K, Weber B, FitzGerald G, Hershey J, Pauly M, Lemaire J, Subramanian K, Asch D: Life insurance and breast cancer risk assessment: adverse selection, genetic testing decisions, and discrimination. Am J Med Genet A. 2003, 120A: 359-364. 10.1002/ajmg.a.20025. |
(Armstrong et al 2003)
États-Unis
|
Consulter |
| Barlow-Stewart K, Keays D: Genetic discrimination in Australia. J L Med. 2001, 8: 250-262. |
(Barlow-Stewart & Keays 2001)
Autriche
|
|
| Barlow-Stewart K, Liepins M, Doble A, Otlowski MFA: How Are Genetic Test Results Being Used by Australian Life Insurers? Eur J Hum Genet. 2018, 26(9): 1248-56. |
(Barlow-Stewart et al 2018)
Australie
|
Consulter |
| Barlow-Stewart K, Taylor SA, Stranger M, Otlowski M: Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing. Genet Med. 2009, 11: 193-201. 10.1097/GIM.0b013e318194ee75. |
(Barlow-Stewart et al 2009)
Australie
|
Consulter |
| Billings P, Khon M, De Cuevas M, Beckwith J, Alper J, Natowicz M: Discrimination as a consequence of genetic testing. Am J Hum Genet. 1992, 50: 476-482. |
(Billings et al 1992)
États-Unis
Canada
|
Consulter |
| Bombard Y, Palin J, Friedman JM, Veenstra G, Creighton S, Bottorff JL, Hayden MR, The Canadian Respond-HD Collaborative Reseach Group: Beyond the patient: the broader impact of genetic discrimination among individuals at risk of Huntington disease. Am J Med Genet B Neuropsychia Genet. 2012, 159B: 217-226. 10.1002/ajmg.b.32016. |
(Bombard et al 2012)
Canada
|
Consulter |
| Bombard Y, Penziner E, Suchowersky O, Guttman M, Paulsen JS, Bottorff JL, Hayden MR: Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease. Eur J Hum Genet. 2008, 16: 279-289. 10.1038/sj.ejhg.5201937. |
(Bombard et al 2008)
Canada
|
Consulter |
| Bombard Y, Veenstra G, Friedman JM, Creighton S, Currie L, Paulsen JS, Bottorff JL, Hayden MR, TCR-HCR Group: Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey. BMJ. 2009, 338: b2175-10.1136/bmj.b2175. |
(Bombard et al 2009)
Canada
|
Consulter |
| Christiaans I, Kok TM, Langen I, Birnie E, Bonsel G, Wilde A, Smets E: Obtaining insurance after DNA diagnostics: a survey among hypertrophic cardiomyopathy mutation carriers. Eur J Hum Genet. 2010, 18: 251-253. 10.1038/ejhg.2009.145. |
(Christiaans et al 2010)
Pays-Bas
|
Consulter |
| Erwin C, Williams JK, Juhl AR, Mengeling M, Mills JA, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS, I-RESPOND-HD Investigators of the Huntington Study Group: Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study. Am J Med Genet B Neuropsychia Genet. 2010, 153B: 1081-1093. |
(Erwin et al 2010)
Australie
Canada
États-Unis
|
Consulter |
| Foster C, Watson M, Eeles R, Ashley S, Davidson R, Mackay J, Morrison PJ, Hopwood P, Evans D, Psychosocial Study Collaborators: Predictive genetic testing for BRCA1/2 in a UK clinical cohort: three-year follow-up. Br J Cancer. 2007, 96: 718-724. 10.1038/sj.bjc.6603610. |
(Foster et al 2007)
Royaume-Uni
|
Consulter |
| Geller L, Alper J, Billings P, Barash C, Beckwith J, Natowicz M: Individual, family, and societal dimensions of genetic discrimination: a case study analysis. Sci Eng Ethics. 1996, 2: 71-88. 10.1007/BF02639319. |
(Geller et al 1996)
États-Unis
|
Consulter |
| Goh AM, Chiu E, Yastrubetskaya O, Erwin C, Williams JK, Juhl AR, Paulsen JS: Perception, Experience, and Response to Genetic Discrimination in Huntington's Disease: The Australian Results of The International RESPOND-HD Study. Genet Test Mol Biomarkers. 2013, 17(2): 115-21. 10.1089/gtmb.2012.0288. |
(Goh et al 2013)
Australie
|
Consulter |
| Hall M, Barton J, Adams P, McLaren C, Reiss J, Castro O, Ruggiero A, Acton R, Power T, Bent T: Genetic screening for iron overload: no evidence of discrimination at 1 year. J Fam Pract. 2007, 56: 829-834. |
(Hall et al 2007)
Canada
États-Unis
|
Consulter |
| Huijgen R, Homsma S, Hutten B, Kindt I, Vissers M, Kastelein J, van Rijckevorsel J: Improved access to life insurance after genetic diagnosis of familial hypercholesterolaemia: cross-sectional postal questionnaire study. Eur J Hum Genet. 2012, 20: 722-728. 10.1038/ejhg.2012.5. |
(Huijgen et al 2012)
Royaume-Uni
|
Consulter |
| Keogh LA, Otlowski MFA: Life Insurance and Genetic Test Results: A Mutation Carrier's Fight to Achieve Full Cover. Med J Aust. 2013, 199(5): 363-366. 10.5694/mja13.10202. |
(Keogh & Otlowski 2013)
Australie
|
Consulter |
| Klitzman R: Views of discrimination among individuals confronting genetic disease. J Genet Couns. 2010, 19: 68-83. 10.1007/s10897-009-9262-8. |
(Klitzman, 2010)
États-Unis
|
Consulter |
| Lapham EV, Kozma C, Weiss JO: Genetic discrimination: perspectives of consumers. Science. 1996, 274: 621-624. 10.1126/science.274.5287.621. |
(Lapham et al 1996)
États-Unis
|
Consulter |
| Lemke T: 'A slap in the face'. An exploratory study of genetic discrimination in Germany. Genomics, Society and Policy. 2009, 5: 22-39. |
(Lemke 2009)
Autriche
Allemagne
États-Unis
|
Consulter |
| Low L, King S, Wilkie T: Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom. BMJ.1998, 317:1632-35. |
(Low et al 1998)
Royaume-Uni
|
Consulter |
| Marang-van de Mheen P, van Maarle M, Stouthard M: Getting insurance after genetic screening on familial hypercholesterolaemia; the need to educate both insurers and the public to increase adherence to national guidelines in the Netherlands. J Epidemiol Community Health. 2002, 56: 145-147. 10.1136/jech.56.2.145. |
(Marang-van de Mheen et al 2002)
Pays-Bas
|
Consulter |
| McEwen JE, McCarthy K, Reilly PR: A survey of medical directors of life insurance companies concerning use of genetic information. Am J Hum Genet. 1993, 55: 33-45. |
(McEwen et al 1993)
États-Unis
|
Consulter |
| McEwen JE, McCarthy K, Reilly PR: A survey of state insurance commissioners concerning genetic testing and life insurance. Am J Hum Genet. 1992, 51: 785-792. |
(McEwen et al 1992)
États-Unis
|
Consulter |
| McKinnon W, Banks KC, Skelly J, Kohlmann W, Bennett R, Shannon K, Larson-Haidle J, Ashakaga T, Weitzel JN, Wood M: Survey of unaffected BRCA and mismatch repair (MMR) mutation positive individuals. Fam Cancer. 2009, 8: 363-369. 10.1007/s10689-009-9248-6. |
(McKinnon et al 2009)
États-Unis
|
Consulter |
| Mohammed S, Lim Z, Dean PH, Potts JE, Tang JN, Etheridge SP, Lara A, Husband P, Sherwin ED, Ackerman MJ, Sanatani S: Genetic Insurance Discrimination in Sudden Arrhythmia Death Syndromes: Empirical Evidence From a Cross-Sectional Survey in North America. Circ Cardiovasc Genet. 2017, 10(1). 10.1161/CIRCGENETICS.116.001442. |
(Mohammed et al 2017)
États-Unis
Canada
|
Consulter |
| Mutoh K, Sakuri T: The status of utilization of personal genetic information in the society and a survey of the literacy among the general public: A report of a specially commissioned project by the Ministry of Health, Labor and Welfare. 2017. |
(Mutoh et al 2017)
Japon
|
Consulter |
| Neil HA, Hammond T, Mant D, Humphries SE: Effect of statin treatment for familial hypercholesterolaemia on life assurance: results of consecutive surveys in 1990 and 2002. BMJ. 2004, 328: 500-501. 10.1136/bmj.328.7438.500. |
(Neil et al 2004)
Royaume-Uni
|
Consulter |
| Neil HA, Mant D: Cholesterol screening and life assurance. BMJ. 1991, 302: 891-893. 10.1136/bmj.302.6781.891. |
(Neil & Mant 1991)
Royaume-Uni
|
Consulter |
| Norum J, Tranebjaerg L: Health, life and disability insurance and hereditary risk for breast or colorectal cancer. Acta Oncol. 2000, 39: 189-193. 10.1080/028418600430752. |
(Norum & Tranebjaerg 2000)
Norvège
|
Consulter |
| Otlowski MFA, Stranger MJA, Taylor S, Barlow-Stewart K, Trealoar S: Investigating genetic discrimination in Australia: perceptions and experiences of clinical genetics service clients regarding coercion to test, insurance and employment. Australia Journal of Emerging Technologies and Society. 2007, 5: 63-83. |
(Otlowski et al 2007 (1))
Australie
|
Consulter |
| Otlowski MFA, Stranger MJA, Taylor S, Barlow-Stewart K, Trealoar S: The use of legal remedies in Australia for pursuing allegations of genetic discrimination: findings of an empirical study. Int J Discrim Law. 2007, 9: 3-35. 10.1177/135822910700900102. |
(Otlowski et al 2007 (2))
Australie
|
Consulter |
| Rodriguez-Bigas MA, Vasen HF, O'Malley L, Rosenblatt MJ, Farell C, Weber TK, Petrelli NJ: Health, life and disability insurance and hereditary nonpolyposis colorectal cancer. Am J Med Genet. 1998, 62: 736-737. |
(Rodriguez-Bigas et al 1998)
États-Unis
|
Consulter |
| Shaheen NJ, Lawrence LB, Bacon BR, Barton JC, Barton NH, Galanko J, Martin CF, Burnett CK, Sandler RS: Insurance, employment, and psychosocial consequences of a diagnosis of hereditary hemochromatosis in subjects without end organ damage. Am J Gastroenterol. 2003, 98: 1175-1180. 10.1111/j.1572-0241.2003.07405.x. |
(Shaheen et al 2003)
États-Unis
|
Consulter |
| Rachel A. Smith, Alan Sillars, Ryan P. Chesnut, and Xun Zhu: Investigating Married Adults' Communal Coping with Genetic Health Risk and Perceived Discrimination. 2018, 85:2 Commun Monogr 181. |
(Smith, Rachel A et al. 2018)
États-Unis
|
Consulter |
| Taylor S, Treloar S, Barlow-Stewart K, Stranger M, Otlowski M: Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet. 2008, 74: 20-30. 10.1111/j.1399-0004.2008.01016.x. |
(Taylor et al 2008)
Australie
|
Consulter |
| Tiller J, Keogh L, Wake S, Delatycki M, Otlowski MFA, Lacaze P: Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce. Front Public Health. 2018, 6: 333. 10.3389/fpubh.2018.00333. |
(Tiller et al 2018)
Australie
Nouvelle-Zélande
|
Consulter |
| Watson M, Foster C, Eeles R, Eccles DM, Ashley S, Davidson R, Mackay J, Morrison PJ, Hopwood P, Evans DG, Psychosocial Study Collaborators: Psychosocial impact of breast/ovarian (BRCA1/2) cancer-predictive genetic testing in a UK multi-centre clinical cohort. Br J Cancer. 2004, 91: 1787-1794. 10.1038/sj.bjc.6602207. |
(Watson et al 2004)
Royaume-Uni
|
Consulter |
| Wertz DC: "Genetic discrimination": results of a survey of genetics professionals, primary care physicians, patients and public. Health Law Rev. 1999, 7: 7-8. |
(Wertz 1999)
Canada
États-Unis
|
Consulter |
| Wertz, Dorothy C & John C Fletcher. “Privacy, Discrimination, and Public Health” in Genetics and Ethics in Global Perspective International Library of Ethics, Law, and the New Medicine 63. |
(Wertz & Fletcher 2004)
Australie
Belgique
Canada
France
Allemagne
Italie
Pays-Bas
Espagne
Royaume-Uni
États-Unis
|
Consulter |
Nombreuses (17 et +)
Plusieurs (7 to 16)
Peu (4 to 6)
Minime (1 to 3)
Aucune étude