ODG  CARTE - Études empiriques sur la DG en assurance-vie

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LÉGENDE
L'échelle de couleur indique le nombre d'études réalisées dans un pays donné et non l'incidence de discrimination génétique. Une analyse quantitative intégrée des études n'’'était pas possible en raison de différences très importantes entre les méthodologies utilisées et les questions de recherche.
Parfois, plusieurs manuscrits font référence à une seule étude empirique. Ils ont été comptés comme un seul afin d'éviter toute fausse
Nombreuses (17 and +)
Plusieurs (7 to 16)
Peu (4 to 6)
Minime (1 to 3)
Aucne étude
Référence intégrale (Référence écourtée)
Pays		 Texte intégral
Alper J, Geller L, Barash C, Billings P, Laden V, Natowicz M: Genetic discrimination and screening for hemochromatosis. J Public Health Policy. 1994, 15: 345-358. 10.2307/3342910. (Alper et al 1994)
    États-Unis 		Consulter
Apse KA, Biesecker BB, Giardiello FM, Fuller BP, Bernhardt BA: Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients. Genet Med. 2004, 6: 510-516. (Apse et al 2004)
    États-Unis 		Consulter
Armstrong K, Weber B, FitzGerald G, Hershey J, Pauly M, Lemaire J, Subramanian K, Asch D: Life insurance and breast cancer risk assessment: adverse selection, genetic testing decisions, and discrimination. Am J Med Genet A. 2003, 120A: 359-364. 10.1002/ajmg.a.20025. (Armstrong et al 2003)
    États-Unis 		Consulter
Barlow-Stewart K, Keays D: Genetic discrimination in Australia. J L Med. 2001, 8: 250-262. (Barlow-Stewart & Keays 2001)
    Autriche
Barlow-Stewart K, Liepins M, Doble A, Otlowski MFA: How Are Genetic Test Results Being Used by Australian Life Insurers? Eur J Hum Genet. 2018, 26(9): 1248-56. (Barlow-Stewart et al 2018)
    Australie 		Consulter
Barlow-Stewart K, Taylor SA, Stranger M, Otlowski M: Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing. Genet Med. 2009, 11: 193-201. 10.1097/GIM.0b013e318194ee75. (Barlow-Stewart et al 2009)
    Australie 		Consulter
Billings P, Khon M, De Cuevas M, Beckwith J, Alper J, Natowicz M: Discrimination as a consequence of genetic testing. Am J Hum Genet. 1992, 50: 476-482. (Billings et al 1992)
    États-Unis
    Canada 		Consulter
Bombard Y, Palin J, Friedman JM, Veenstra G, Creighton S, Bottorff JL, Hayden MR, The Canadian Respond-HD Collaborative Reseach Group: Beyond the patient: the broader impact of genetic discrimination among individuals at risk of Huntington disease. Am J Med Genet B Neuropsychia Genet. 2012, 159B: 217-226. 10.1002/ajmg.b.32016. (Bombard et al 2012)
    Canada 		Consulter
Bombard Y, Penziner E, Suchowersky O, Guttman M, Paulsen JS, Bottorff JL, Hayden MR: Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease. Eur J Hum Genet. 2008, 16: 279-289. 10.1038/sj.ejhg.5201937. (Bombard et al 2008)
    Canada 		Consulter
Bombard Y, Veenstra G, Friedman JM, Creighton S, Currie L, Paulsen JS, Bottorff JL, Hayden MR, TCR-HCR Group: Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey. BMJ. 2009, 338: b2175-10.1136/bmj.b2175. (Bombard et al 2009)
    Canada 		Consulter
Christiaans I, Kok TM, Langen I, Birnie E, Bonsel G, Wilde A, Smets E: Obtaining insurance after DNA diagnostics: a survey among hypertrophic cardiomyopathy mutation carriers. Eur J Hum Genet. 2010, 18: 251-253. 10.1038/ejhg.2009.145. (Christiaans et al 2010)
    Pays-Bas 		Consulter
Erwin C, Williams JK, Juhl AR, Mengeling M, Mills JA, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS, I-RESPOND-HD Investigators of the Huntington Study Group: Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study. Am J Med Genet B Neuropsychia Genet. 2010, 153B: 1081-1093. (Erwin et al 2010)
    Australie
    Canada
    États-Unis 		Consulter
Foster C, Watson M, Eeles R, Ashley S, Davidson R, Mackay J, Morrison PJ, Hopwood P, Evans D, Psychosocial Study Collaborators: Predictive genetic testing for BRCA1/2 in a UK clinical cohort: three-year follow-up. Br J Cancer. 2007, 96: 718-724. 10.1038/sj.bjc.6603610. (Foster et al 2007)
    Royaume-Uni 		Consulter
Geller L, Alper J, Billings P, Barash C, Beckwith J, Natowicz M: Individual, family, and societal dimensions of genetic discrimination: a case study analysis. Sci Eng Ethics. 1996, 2: 71-88. 10.1007/BF02639319. (Geller et al 1996)
    États-Unis 		Consulter
Goh AM, Chiu E, Yastrubetskaya O, Erwin C, Williams JK, Juhl AR, Paulsen JS: Perception, Experience, and Response to Genetic Discrimination in Huntington's Disease: The Australian Results of The International RESPOND-HD Study. Genet Test Mol Biomarkers. 2013, 17(2): 115-21. 10.1089/gtmb.2012.0288. (Goh et al 2013)
    Australie 		Consulter
Hall M, Barton J, Adams P, McLaren C, Reiss J, Castro O, Ruggiero A, Acton R, Power T, Bent T: Genetic screening for iron overload: no evidence of discrimination at 1 year. J Fam Pract. 2007, 56: 829-834. (Hall et al 2007)
    Canada
    États-Unis 		Consulter
Huijgen R, Homsma S, Hutten B, Kindt I, Vissers M, Kastelein J, van Rijckevorsel J: Improved access to life insurance after genetic diagnosis of familial hypercholesterolaemia: cross-sectional postal questionnaire study. Eur J Hum Genet. 2012, 20: 722-728. 10.1038/ejhg.2012.5. (Huijgen et al 2012)
    Royaume-Uni 		Consulter
Keogh LA, Otlowski MFA: Life Insurance and Genetic Test Results: A Mutation Carrier's Fight to Achieve Full Cover. Med J Aust. 2013, 199(5): 363-366. 10.5694/mja13.10202. (Keogh & Otlowski 2013)
    Australie 		Consulter
Klitzman R: Views of discrimination among individuals confronting genetic disease. J Genet Couns. 2010, 19: 68-83. 10.1007/s10897-009-9262-8. (Klitzman, 2010)
    États-Unis 		Consulter
Lapham EV, Kozma C, Weiss JO: Genetic discrimination: perspectives of consumers. Science. 1996, 274: 621-624. 10.1126/science.274.5287.621. (Lapham et al 1996)
    États-Unis 		Consulter
Lemke T: 'A slap in the face'. An exploratory study of genetic discrimination in Germany. Genomics, Society and Policy. 2009, 5: 22-39. (Lemke 2009)
    Autriche
    Allemagne
    États-Unis 		Consulter
Low L, King S, Wilkie T: Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom. BMJ.1998, 317:1632-35. (Low et al 1998)
    Royaume-Uni 		Consulter
Marang-van de Mheen P, van Maarle M, Stouthard M: Getting insurance after genetic screening on familial hypercholesterolaemia; the need to educate both insurers and the public to increase adherence to national guidelines in the Netherlands. J Epidemiol Community Health. 2002, 56: 145-147. 10.1136/jech.56.2.145. (Marang-van de Mheen et al 2002)
    Pays-Bas 		Consulter
McEwen JE, McCarthy K, Reilly PR: A survey of medical directors of life insurance companies concerning use of genetic information. Am J Hum Genet. 1993, 55: 33-45. (McEwen et al 1993)
    États-Unis 		Consulter
McEwen JE, McCarthy K, Reilly PR: A survey of state insurance commissioners concerning genetic testing and life insurance. Am J Hum Genet. 1992, 51: 785-792. (McEwen et al 1992)
    États-Unis 		Consulter
McKinnon W, Banks KC, Skelly J, Kohlmann W, Bennett R, Shannon K, Larson-Haidle J, Ashakaga T, Weitzel JN, Wood M: Survey of unaffected BRCA and mismatch repair (MMR) mutation positive individuals. Fam Cancer. 2009, 8: 363-369. 10.1007/s10689-009-9248-6. (McKinnon et al 2009)
    États-Unis 		Consulter
Mohammed S, Lim Z, Dean PH, Potts JE, Tang JN, Etheridge SP, Lara A, Husband P, Sherwin ED, Ackerman MJ, Sanatani S: Genetic Insurance Discrimination in Sudden Arrhythmia Death Syndromes: Empirical Evidence From a Cross-Sectional Survey in North America. Circ Cardiovasc Genet. 2017, 10(1). 10.1161/CIRCGENETICS.116.001442. (Mohammed et al 2017)
    États-Unis
    Canada 		Consulter
Mutoh K, Sakuri T: The status of utilization of personal genetic information in the society and a survey of the literacy among the general public: A report of a specially commissioned project by the Ministry of Health, Labor and Welfare. 2017. (Mutoh et al 2017)
    Japon 		Consulter
Neil HA, Hammond T, Mant D, Humphries SE: Effect of statin treatment for familial hypercholesterolaemia on life assurance: results of consecutive surveys in 1990 and 2002. BMJ. 2004, 328: 500-501. 10.1136/bmj.328.7438.500. (Neil et al 2004)
    Royaume-Uni 		Consulter
Neil HA, Mant D: Cholesterol screening and life assurance. BMJ. 1991, 302: 891-893. 10.1136/bmj.302.6781.891. (Neil & Mant 1991)
    Royaume-Uni 		Consulter
Norum J, Tranebjaerg L: Health, life and disability insurance and hereditary risk for breast or colorectal cancer. Acta Oncol. 2000, 39: 189-193. 10.1080/028418600430752. (Norum & Tranebjaerg 2000)
    Norvège 		Consulter
Otlowski MFA, Stranger MJA, Taylor S, Barlow-Stewart K, Trealoar S: Investigating genetic discrimination in Australia: perceptions and experiences of clinical genetics service clients regarding coercion to test, insurance and employment. Australia Journal of Emerging Technologies and Society. 2007, 5: 63-83. (Otlowski et al 2007 (1))
    Australie 		Consulter
Otlowski MFA, Stranger MJA, Taylor S, Barlow-Stewart K, Trealoar S: The use of legal remedies in Australia for pursuing allegations of genetic discrimination: findings of an empirical study. Int J Discrim Law. 2007, 9: 3-35. 10.1177/135822910700900102. (Otlowski et al 2007 (2))
    Australie 		Consulter
Rodriguez-Bigas MA, Vasen HF, O'Malley L, Rosenblatt MJ, Farell C, Weber TK, Petrelli NJ: Health, life and disability insurance and hereditary nonpolyposis colorectal cancer. Am J Med Genet. 1998, 62: 736-737. (Rodriguez-Bigas et al 1998)
    États-Unis 		Consulter
Shaheen NJ, Lawrence LB, Bacon BR, Barton JC, Barton NH, Galanko J, Martin CF, Burnett CK, Sandler RS: Insurance, employment, and psychosocial consequences of a diagnosis of hereditary hemochromatosis in subjects without end organ damage. Am J Gastroenterol. 2003, 98: 1175-1180. 10.1111/j.1572-0241.2003.07405.x. (Shaheen et al 2003)
    États-Unis 		Consulter
Rachel A. Smith, Alan Sillars, Ryan P. Chesnut, and Xun Zhu: Investigating Married Adults' Communal Coping with Genetic Health Risk and Perceived Discrimination. 2018, 85:2 Commun Monogr 181. (Smith, Rachel A et al. 2018)
    États-Unis 		Consulter
Taylor S, Treloar S, Barlow-Stewart K, Stranger M, Otlowski M: Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet. 2008, 74: 20-30. 10.1111/j.1399-0004.2008.01016.x. (Taylor et al 2008)
    Australie 		Consulter
Tiller J, Keogh L, Wake S, Delatycki M, Otlowski MFA, Lacaze P: Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce. Front Public Health. 2018, 6: 333. 10.3389/fpubh.2018.00333. (Tiller et al 2018)
    Australie
    Nouvelle-Zélande 		Consulter
Watson M, Foster C, Eeles R, Eccles DM, Ashley S, Davidson R, Mackay J, Morrison PJ, Hopwood P, Evans DG, Psychosocial Study Collaborators: Psychosocial impact of breast/ovarian (BRCA1/2) cancer-predictive genetic testing in a UK multi-centre clinical cohort. Br J Cancer. 2004, 91: 1787-1794. 10.1038/sj.bjc.6602207. (Watson et al 2004)
    Royaume-Uni 		Consulter
Wertz DC: "Genetic discrimination": results of a survey of genetics professionals, primary care physicians, patients and public. Health Law Rev. 1999, 7: 7-8. (Wertz 1999)
    Canada
    États-Unis 		Consulter
Wertz, Dorothy C & John C Fletcher. “Privacy, Discrimination, and Public Health” in Genetics and Ethics in Global Perspective International Library of Ethics, Law, and the New Medicine 63. (Wertz & Fletcher 2004)
    Australie
    Belgique
    Canada
    France
    Allemagne
    Italie
    Pays-Bas
    Espagne
    Royaume-Uni     États-Unis 		Consulter

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