Australia takes a historic step with the Treasury Laws Amendment Bill 2025, banning insurers from using genetic test results. This landmark reform ensures genetic privacy and fair access to life insurance for all Australians. Read the draft here.
What is GD?
Genetic discrimination involves an individual or a group being negatively treated, unfairly profiled or harmed, relative to the rest of the population, on the basis of actual or presumed genetic characteristics.
Read MoreAbout GDO
The Genetic Discrimination Observatory (GDO) is a unique network of researchers and other stakeholders dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to information and tools needed to monitor and prevent genetic discrimination.
Read MoreHere are selected publications, news, resources, and blog articles published by the Genetic Discrimination Observatory (GDO).
The Genetic Discrimination Observatory (GDO) is proud to celebrate Professor Ine Van Hoyweghen, who has received the prestigious 2025 Francqui-Collen Prize, one of Belgium’s highest scientific distinctions.
In a recent GDO video, Dr. Diya Uberoi and Abby Rud explored what genetic discrimination is, where it occurs, and its real-world impact. They highlighted Canada's legal protections, including the GNDA and CHRA, and offered key recommendations to address existing gaps and reduce the public's fear around genetic data use. Watch the video here.