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The Genetic Discrimination Observatory aims to better understand discriminatory events and compile information on the incidence and consequences of genetic discrimination in different countries to enable policymakers, genetic service providers, patient groups, and industry to address this issue in a manner that is both ethical and informed by evidence.
If you have been treated differently, negatively, or unfairly profiled based on your actual (e.g. genetic tests) or presumed genetic characteristics (e.g. family history), you are invited to share your story with the Observatory.
Your identity will be kept confidential.

At this moment, we can only accept cases from Canada, United States, Mexico and the U.K. However, we are in the process of obtaining ethics approval for other countries.

Before sharing your story, kindly try, to the best of your capacity, to provide answers to the 4 questions below. If you prefer not to answer, directly proceed to the Description of the Discrimination Events section.

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I have read the above information, have had my questions answered regarding my participation, and understand the purposes, nature, benefits, risks and harms of this research.