Fear of genetic discrimination could prevent individuals from accessing risk-based screening, despite its potential for early breast cancer detection. Nearly half of participants in this study worry their risk score could impact insurance access. Legal protections for models like BOADICEA remain unclear, highlighting the need for greater clarity. Read more here.
There are growing calls for the Australian Government to ban genetic discrimination in life insurance. Health groups and industry leaders highlight concerns that delays by the government may impact Australians seeking genetic testing for early detection and prevention. Read more about it here.
Despite Canada's Genetic Non-Discrimination Act (2017), fears of genetic discrimination constinue to exclude children with rare cancers from studies. Our project will explore human rights protections and engage researchers and parents to adress these concerns. Learn about it here.
In light of advancements in precision medicision, Singapore seeks to strengthen its moratorium on genetic testing and insurance through new legislation on genetic test data. Read about it here.
The GDO's 5th Annual Conference will be held in Istanbul on December 17th and 18th, 2024! This year’s hybrid conference is entitled "Genetic Discrimination in the Era of Artificial Intelligence and Advancing Technologies". Reach out to Dr. Diya Uberoi, Abby Rud, and/or Ariel Xue to express your interest in joining.
The Australian Government recently announced that life insurers in Australia will be banned from using genetic tests to refuse coverage—a significant step forward in protecting Australians, who have been avoiding life-saving tests due to insurance concerns. Read more about it, and GDO Member Jane Tiller’s contributions, here!
To address the evolving concerns around GD, the GDO proposed a new and more encompassing definition of Genetic Discrimination. Read about its development here.
In this GDO collaborative research project published by JAMA Network Open, expert opinions were gathered to identify more effective policy approaches to address GD.