What is GD?

Genetic discrimination involves an individual or a group being negatively treated, unfairly profiled or harmed, relative to the rest of the population, on the basis of actual or presumed genetic characteristics.

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About GDO

The Genetic Discrimination Observatory (GDO) is a unique network of researchers and other stakeholders dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to information and tools needed to monitor and prevent genetic discrimination.

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Latest Publications|News|Resources|Blog Articles

Here are selected publications, news, resources, and blog articles published by the Genetic Discrimination Observatory (GDO).

Article

THE A-GLIMMER PROJECT - AUSTRALIAN GOVERNMENT TO BAN GENETIC DISCRIMINATION

The Australian Government recently announced that life insurers in Australia will be banned from using genetic tests to refuse coverage—a significant step forward in protecting Australians, who have been avoiding life-saving tests due to insurance concerns. Read more about it, and GDO Member Jane Tiller’s contributions, here!

Genetics

PROPOSAL FOR AN INCLUSIVE WORKING DEFINITION OF GENETIC DISCRIMINATION

To address the evolving concerns around GD, the GDO proposed a new and more encompassing definition of Genetic Discrimination. Read about its development here.

Genetics

NEW DELPHI STUDY ON EFFECTIVE GENETIC NON-DISCRIMINATION POLICYMAKING

In this GDO collaborative research project published by JAMA Network Open, expert opinions were gathered to identify more effective policy approaches to address GD.