What is GD?

Genetic discrimination involves an individual or a group being negatively treated, unfairly profiled or harmed, relative to the rest of the population, on the basis of actual or presumed genetic characteristics.

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About GDO

The Genetic Discrimination Observatory (GDO) is a unique network of researchers and other stakeholders dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to information and tools needed to monitor and prevent genetic discrimination.

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Here are selected publications, news, resources, and blog articles published by the Genetic Discrimination Observatory (GDO).

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GDO'S 7TH ANNUAL CONFERENCE

We are thrilled to announce that the GDO will be hosting its 7th Annual Scientific Meeting titled "Genetics, Insurance, and Innovation: Building Trust in Genetic Medicine Without Discrimination". The annual conference will take place this October 27th and 28th, 2026, at the Le Centre Sheraton Montreal Hotel and online (hybrid format). The meeting will feature our keynote speaker Prof. Bartha Maria Knoppers who will present on "Reimagining Genetic ‘Discrimination’ with Polygenic Risk Scores?".

This conference will bring together international experts to exchange insights; address the opportunities and challenges at the intersection of genetics, insurance, and biotechnology; review progress on GDO activities; and advance a shared agenda for responsible innovation, equitable access to genomic technologies, and collaborative research in 2027.

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HIGHLIGHTS FROM THE GDO’S 6TH ANNUAL CONFERENCE

That’s a wrap on the GDO’s 6th Annual Conference, hosted by Prof. Yann Joly and Dr. Lingqiao Song at the Centre of Genomics and Policy! Explore the highlights of the conference, featuring keynote insights from Prof. Mark Rothstein and global perspectives on genetic discrimination, by reading our full recap on LinkedIn

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AUSTRALIA BANS GENETIC DISCRIMINATION IN LIFE INSURANCE

Australia takes a historic step with the Treasury Laws Amendment Bill 2025, banning insurers from using genetic test results. This landmark reform ensures genetic privacy and fair access to life insurance for all Australians. Read the draft here.