Genetic discrimination involves an individual or a group being negatively treated, unfairly profiled or harmed, relative to the rest of the population, on the basis of actual or presumed genetic characteristics.
Read MoreThe Genetic Discrimination Observatory (GDO) is a unique network of researchers and other stakeholders dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to information and tools needed to monitor and prevent genetic discrimination.
Read MoreHere are selected publications, news, resources, and blog articles published by the Genetic Discrimination Observatory (GDO).
There are growing calls for the Australian Government to ban genetic discrimination in life insurance. Health groups and industry leaders highlight concerns that delays by the government may impact Australians seeking genetic testing for early detection and prevention. Read more about it here.
Despite Canada's Genetic Non-Discrimination Act (2017), fears of genetic discrimination constinue to exclude children with rare cancers from studies. Our project will explore human rights protections and engage researchers and parents to adress these concerns. Learn about it here.
In light of advancements in precision medicision, Singapore seeks to strengthen its moratorium on genetic testing and insurance through new legislation on genetic test data. Read about it here.