In a recent GDO video, Dr. Diya Uberoi and Abby Rud explored what genetic discrimination is, where it occurs, and its real-world impact. They highlighted Canada's legal protections, including the GNDA and CHRA, and offered key recommendations to address existing gaps and reduce the public's fear around genetic data use. Watch the video here.
What is GD?
Genetic discrimination involves an individual or a group being negatively treated, unfairly profiled or harmed, relative to the rest of the population, on the basis of actual or presumed genetic characteristics.
Read MoreAbout GDO
The Genetic Discrimination Observatory (GDO) is a unique network of researchers and other stakeholders dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. The GDO serves as a comprehensive online resource that offers a collaborative platform providing access to information and tools needed to monitor and prevent genetic discrimination.
Read MoreHere are selected publications, news, resources, and blog articles published by the Genetic Discrimination Observatory (GDO).
At a recent McGill session led by Dr. Diya Uberoi, medical genetics residents explored the GNDA, its limits, and why fear of insurance bias still deters testing.
Sociogenomic research, especially studies using poligenic scores for traits like same-sex behavior, raises important ethical concerns about potential group harms that are often overlooked by researchers. View the publication here.