Latest Publications and News

  • Journal Article
    Greenbaum Dov, Gerstein Mark. GATTACA is still pertinent 25 years later. Nat Genet. 2022;:1-3. Available from: https://www.nature.com/articles/s41588-022-01242-5
    Journal Article
    Cowan James S., Kagedan Barbara Laine, Graham Gail E., Heim-Myers Bev, Bombard Yvonne. Health care implications of the Genetic Non-Discrimination Act: Protection for Canadians’ genetic information. Canadian Family Physician. 2022;68(9):643-646. Available from: https://www.cfp.ca/content/68/9/643
    Journal Article
    Joly Yann, Dalpe Gratien. Genetic discrimination still casts a large shadow in 2022. Eur J Hum Genet. 2022;:1-3. Available from: https://www.nature.com/articles/s41431-022-01194-8
    Journal Article
    Dupras Charles, Knoppers Terese, Palmour Nicole, Beauchamp Elisabeth, Liosi Stamatina, Siebert Reiner, et al. Researcher perspectives on ethics considerations in epigenetics: an international survey. Clin Epigenet. 2022;14(1):110. Available from: https://doi.org/10.1186/s13148-022-01322-7
    Journal Article
    Dowling Grace, Tiller Jane, McInerney-Leo Aideen, Belcher Andrea, Haining Casey, Barlow-Stewart Kristine, et al. Health professionals’ views and experiences of the Australian moratorium on genetic testing and life insurance: A qualitative study. Eur J Hum Genet. 2022;:1-7. Available from: https://www.nature.com/articles/s41431-022-01150-6
    Journal Article
    Leib-Neri Marisa A., Prince Anya E. R. Privacy and the Genetic Community. The American Journal of Bioethics. 2022;22(7):70-72. Available from: https://www.tandfonline.com/doi/full/10.1080/15265161.2022.2075972
    Journal Article
    Prince Anya E. R., Suter Sonia M., Uhlmann Wendy R., Scherer Aaron M. The goldilocks conundrum: Disclosing discrimination risks in informed consent. Journal of Genetic Counseling. 2022;n/a(n/a) Available from: https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1613
    Journal Article
    Huerne Katherine, Palmour Nicole, Wu Angela Ruohao, Beck Stephan, Berner Alison, Siebert Reiner, et al. Auditing the Editor: A Review of Key Translational Issues in Epigenetic Editing. The CRISPR Journal. 2022; Available from: https://www.liebertpub.com/doi/10.1089/crispr.2021.0094
    Journal Article
    Arych Mykhailo, Joly Yann. Genetic Discrimination in Access to Life Insurance: Does Ukrainian Legislation Offer Sufficient Protection against the Adverse Consequences of the Genetic Revolution to Insurance Applicants?. Laws. 2021;11(1):2. Available from: https://www.mdpi.com/2075-471X/11/1/2
    Journal Article
    Beauvais M J S, Knoppers B M, Boscarino C. Navigating the ethical maze of genomics in Canada’s military. BMJ Mil Health. 2021;:e001954. Available from: https://militaryhealth.bmj.com/lookup/doi/10.1136/bmjmilitary-2021-001954
    Journal Article
    Dupras Charles, Bunnik Eline M. Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases. The American Journal of Bioethics. 2021;21(12):46-64. Available from: https://doi.org/10.1080/15265161.2020.1863516
    Journal Article
    Lenartz Andrea, Scherer Aaron M., Uhlmann Wendy R., Suter Sonia M., Anderson Hartley Colleen, Prince Anya E. R. The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage. Genetics in Medicine. 2021;23(12):2324-2334. Available from: https://www.nature.com/articles/s41436-021-01268-w
    Journal Article
    Knoppers Terese, Beauchamp Elisabeth, Dewar Ken, Kimmins Sarah, Bourque Guillaume, Joly Yann, et al. The omics of our lives: practices and policies of direct-to-consumer epigenetic and microbiomic testing companies. New Genetics and Society. 2021;0(0):1-29. Available from: https://doi.org/10.1080/14636778.2021.1997576
    Journal Article
    Prince Anya E. R., Uhlmann Wendy R., Suter Sonia M., Scherer Aaron M. Genetic testing and insurance implications: Surveying the US general population about discrimination concerns and knowledge of the Genetic Information Nondiscrimination Act (GINA). Risk Management and Insurance Review. 2021;n/a(n/a) Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/rmir.12195
    Journal Article
    Polygenic Risk Score Task Force of the International Common Disease Alliance, Adeyemo Adebowale, Balaconis Mary K., Darnes Deanna R., Fatumo Segun, Granados Moreno Palmira, et al. Responsible use of polygenic risk scores in the clinic: potential benefits, risks and gaps. Nat Med. 2021; Available from: https://www.nature.com/articles/s41591-021-01549-6
    Journal Article
    Joly Yann, Huerne Katherine, Arych Mykhailo, Bombard Yvonne, De Paor Aisling, Dove Edward S., et al. The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination. Trends in Genetics. 2021;37(11):951-954. Available from: https://www.sciencedirect.com/science/article/pii/S0168952521002286
    Journal Article
    Knoppers Bartha Maria, Beauvais Michael J S. Three decades of genetic privacy: a metaphoric journey. Human Molecular Genetics. 2021;30(R2):R156-R160. Available from: https://academic.oup.com/hmg/article/30/R2/R156/6307333
    Journal Article
    Arych Mykhailo, Levon Mariia, Arych Halyna, Kulynych Yurii. Genetic Testing in Insurance Implications for Non-EU Insurance Markets as a Part of the European Integration Process. OJMNE. 2021;(36):25-52. Available from: http://neweurope.centre.ubbcluj.ro/wp-content/uploads/2021/09/2.pdf
    Journal Article
    Tiller Jane M., Keogh Louise A., McInerney-Leo Aideen M., Belcher Andrea, Barlow-Stewart Kristine, Boughtwood Tiffany, et al. A step forward, but still inadequate: Australian health professionals’ views on the genetics and life insurance moratorium. Journal of Medical Genetics. 2021; Available from: https://jmg.bmj.com/content/early/2021/09/20/jmedgenet-2021-107989
    Journal Article
    Alarie Samuel, Hagan Julie, Dalpe Gratien, Faraji Sina, Mbuya-Bienge Cynthia, Nabi Hermann, et al. Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data. Journal of Personalized Medicine. 2021;11(8):726. Available from: https://www.mdpi.com/2075-4426/11/8/726
    Journal Article
    Tiller Jane, Delatycki Martin B. Genetic discrimination in life insurance: a human rights issue. Journal of Medical Ethics. 2021;47(7):484-485. Available from: https://jme.bmj.com/content/47/7/484
    Journal Article
    Kim Hannah, Ho Calvin W. L., Ho Chih-Hsing, Athira P. S., Kato Kazuto, De Castro Leonardo, et al. Genetic discrimination: introducing the Asian perspective to the debate. npj Genom. Med.. 2021;6(1):1-8. Available from: https://www.nature.com/articles/s41525-021-00218-4
    Journal Article
    Golinghorst Dexter, De Paor Aisling, Joly Yann, Macdonald Angus S., Otlowski Margaret, Peter Richard, et al. Anti-selection & Genetic Testing in Insurance: An Interdisciplinary Perspective. . 2021; Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/antiselection-genetic-testing-in-insurance...
    Journal Article
    Wauters Annet, Van Hoyweghen Ine. Normalising life at risk of Huntington’s disease. A qualitative study of backgrounds and coping strategies of fears of genetic discrimination. Eur J Hum Genet. 2021;29(6):940-948. Available from: http://www.nature.com/articles/s41431-021-00822-z
    Journal Article
    Tiller Jane, McInerney-Leo Aideen, Belcher Andrea, Boughtwood Tiffany, Gleeson Penny, Delatycki Martin, et al. Study protocol: the Australian genetics and life insurance moratorium—monitoring the effectiveness and response (A-GLIMMER) project. BMC Medical Ethics. 2021;22(1):63. Available from: https://doi.org/10.1186/s12910-021-00634-2
    Journal Article
    Joly Yann, Dalpe Gratien, Gallois Hortense, Knoppers Bartha Maria, Turp Daniel. Erring In Law and In Fact: The Supreme Court of Canada’s Reference Re Genetic Non-Discrimination Act. Canadian Bar Review. 2021;99(1):172-192. Available from: https://cbr.cba.org/index.php/cbr/article/view/4662
    Journal Article
    Tiller Jane, Winship Ingrid, Otlowski Margaret FA, Lacaze Paul A. Monitoring the genetic testing and life insurance moratorium in Australia: a national research project. Medical Journal of Australia. 2021;214(4):157. Available from: https://onlinelibrary.wiley.com/doi/10.5694/mja2.50922
    Journal Article
    Mbuya Bienge Cynthia, Pashayan Nora, Brooks Jennifer D., Dorval Michel, Chiquette Jocelyne, Eloy Laurence, et al. Women's Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada. J Pers Med. 2021;11(2) Available from: https://www.mdpi.com/2075-4426/11/2/95
    Journal Article
    Rothstein Mark A. Can Genetic Nondiscrimination Laws Save Lives?. Hastings Center Report. 2021;51(1):6-7. Available from: http://doi.wiley.com/10.1002/hast.1204
    Journal Article
    Audrey Lebret, Timo Minssen. Digital Health, Artificial Intelligence and Accessibility to Health Care in Denmark. European Human Rights Law Review. 2021;(1):39-49. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fdigital-health-artificial-intelligence-and-accessibility-...
    Journal Article
    Anderson Jarrod, Lewis Anna, Prince Anya. The Problems with Patchwork: State Approaches to Regulating Insurer Use of Genetic Information. DePaul J. Health Care L.. 2021;22(1):1. Available from: https://via.library.depaul.edu/jhcl/vol22/iss1/1/?utm_source=via.library.depaul.edu%2Fjhcl%2Fvol22%2Fiss1%2F1&utm_medium=PDF&...
    Journal Article
    Dalpe Gratien, Pinkesz Miriam, Oliviero Elisabeth, Tolymbek Maria, Joly Yann. Genetic discrimination views in online discussion forums: Perspectives from Canadian forumites. Journal of Genetic Counseling. 2021;00:1-16. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1427
    Journal Article
    Dalpe Gratien, Pinkesz Miriam, Marrocco Gabriel, Joly Yann. Les enjeux québécois de la discrimination génétique : l’expérience d’un forum en ligne. Les ateliers de l'éthique / The Ethics Forum. 2021;15(1-2):4-38. Available from: https://doi.org/10.7202/1077527ar
    Journal Article
    Golinghorst Dexter R., Prince Anya E. R. A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27. J Genet Couns. 2020;29(6):928-935. Available from: https://pubmed.ncbi.nlm.nih.gov/31850620/
    Journal Article
    Rothstein Mark A., Brothers Kyle B. Banning Genetic Discrimination in Life Insurance — Time to Follow Florida’s Lead. N Engl J Med. 2020;383(22):2099-2101. Available from: http://www.nejm.org/doi/10.1056/NEJMp2024123
    Journal Article
    Joly Yann, Dupras Charles, Pinkesz Miriam, Tovino Stacey A., Rothstein Mark A. Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination. Annu. Rev. Genom. Hum. Genet.. 2020;21(1):491-507. Available from: https://www.annualreviews.org/doi/10.1146/annurev-genom-111119-011436
    Book Section
    Minssen Timo. Denmark. In: AI, Big Data and Machine Learning. 2nd edition. London: Global Legal Group Ltd; 2020. p. 113-128. Available from: https://www.acc.com/sites/default/files/resources/upload/GLI-AIML20_E-Edition.pdf
    Journal Article
    Joly Yann, Dalpe Gratien, Dupras Charles, Bévière-Boyer Bénédicte, de Paor Aisling, Dove Edward S., et al. Establishing the International Genetic Discrimination Observatory. Nat Genet. 2020;52(5):466-468. Available from: https://www.nature.com/articles/s41588-020-0606-5
    Journal Article
    Dupras Charles, Joly Yann, Rial-Sebbag Emmanuelle. Human rights in the postgenomic era: Challenges and opportunities arising with epigenetics. Social Science Information. 2020;59(1):12-34. Available from: http://journals.sagepub.com/doi/10.1177/0539018419900139
    Journal Article
    Phillips Mark, Molnár-Gábor Fruzsina, Korbel Jan O., Thorogood Adrian, Joly Yann, Chalmers Don, et al. Genomics: data sharing needs an international code of conduct. Nature. 2020;578(7793):31-33. Available from: http://www.nature.com/articles/d41586-020-00082-9
    Journal Article
    Tiller Jane, Morris Susan, Rice Toni, Barter Krystal, Riaz Moeen, Keogh Louise, et al. Genetic discrimination by Australian insurance companies: a survey of consumer experiences. European Journal of Human Genetics : EJHG. 2020;28(1):108-113. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/genetic-discrimination-australian-insur...
    Book Section
    Joly Yann, Marrocco Gabriel. Regulating the Use of Genetic Testing by Insurers and Employers in the Province of Quebec: Is the Genetic Non-Discrimination Act Really Necessary?. In: Khoury, Lara; Blackett, Adelle; Vanhonnaeker, Lukas, editors. Genetic Testing and the Governance of Risk in the Contemporary Economy: Comparative Reflections in the Insurance and Employment Law Contexts. Cham: Springer International Publishing; 2020. p. 269-292. Available from: https://doi.org/10.1007/978-3-030-43699-5_12
    Book Section
    Byk Christian. L’utilisation des tests génétiques dans le domaine de l’assurance en droit français et européen : une affaire d’assurance et de politique publique. In: Khoury, Lara; Blackett, Adelle; Vanhonnaeker, Lukas, editors. Genetic Testing and the Governance of Risk in the Contemporary Economy: Comparative Reflections in the Insurance and Employment Law Contexts. Cham: Springer International Publishing; 2020. p. 193-220. Available from: http://link.springer.com/10.1007/978-3-030-43699-5
    Journal Article
    Rothstein Mark A. Predictive Health Information and Employment Discrimination under the ADA and GINA. J. Law. Med. Ethics. 2020;48(3):595-602. Available from: https://www.cambridge.org/core/product/identifier/S1073110500026772/type/journal_article
    Journal Article
    Prince Anya E R, Schwarcz Daniel. Proxy Discrimination in the Age of Artificial Intelligence and Big Data. Iowa Law Review. 2020;105:62. Available from: https://scholarship.law.umn.edu/cgi/viewcontent.cgi?article=1695&context=faculty_articles
    Journal Article
    Gerke Sara, Minssen Timo, Cohen Glenn. Ethical and legal challenges of artificial intelligence-driven healthcare. Artificial Intelligence in Healthcare. 2020;:295-336. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7332220/
    Journal Article
    Bévière-Boyer Bénédicte. Réflexions éthiques et juridiques sur la modification génétique constitutionnelle des cellules germinales humaines. Revue générale de droit médical. 2020;(77):16. Available from: https://www.bnds.fr/revue/rgdm/rgdm-77/reflexions-ethiques-et-juridiques-sur-la-modification-genetique-constitutionnelle-des-...
    Journal Article
    Nicolás Pilar. Obtencion y Utilizacion de Datos Geneticos en la Contratacion de Seguros. La Dificil Concrecion de la Prohibicion de Discriminacion. Revista da Faculdade Mineira de Direito. 2019;22(43) Available from: http://periodicos.pucminas.br/index.php/Direito/article/view/21250
    Journal Article
    Clayton Ellen Wright, Evans Barbara J, Hazel James W, Rothstein Mark A. The law of genetic privacy: applications, implications, and limitations. Journal of Law and the Biosciences. 2019;6(1):1-36. Available from: https://doi.org/10.1093/jlb/lsz007
    Journal Article
    Joly Yann, Dalpe Gratien, Pinkesz Miriam. Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non- Discrimination Act (GNDA). Canadian Journal of Bioethics. 2019;2(2):94-96. Available from: https://doi.org/10.7202/1064941ar
    Journal Article
    Dupras Charles, Beck Stephan, Rothstein Mark A, Berner Alison, Saulnier Katie M, Pinkesz Miriam, et al. Potential (mis)use of epigenetic age estimators by private companies and public agencies: human rights law should provide ethical guidance. Environmental Epigenetics. 2019;5(3):dvz018. Available from: https://doi.org/10.1093/eep/dvz018
    Journal Article
    Prince Anya E.R. Comparative perspectives: regulating insurer use of genetic information. Eur J Hum Genet. 2019;27(3):340-348. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6460564/
    Journal Article
    Otlowski Margaret, Barlow-Stewart Kristine, Lacaze Paul, Tiller Jane. Genetic testing and insurance in Australia.. Australian journal of general practice. 2019;48(3):96-99. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/genetic-testing-insurance-australia/doc...
    Journal Article
    Katharina O Cathaoir. In Search of Solidarity: Personalised Medicine in Denmark. Nordisk socialrättslig tidskrift. 2019;(21-22):65-95. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fin-search-of-solidarity-personalised-medicine-in-denmark(...
    Journal Article
    Katharina O Cathaoir. Personlig medicin - en udfordring for patienters rettigheder?. Juristen. 2019;(6):219-231. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fin-search-of-solidarity-personalised-medicine-in-denmark(...
    Journal Article
    Otlowski Margaret, Tiller Jane, Barlow -Stewart Kristine, Lacaze Paul. Genetic testing and insurance in Australia. Australian Journal of General Practice. 2019;48(3):96-99. Available from: https://search.informit.org/doi/abs/10.3316/INFORMIT.245625531942179
    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. The Role of Human Genome Related Legal Study Development. Theoretical & Applied Science. 2018;68(12):290-292. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-43.html
    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. System of Legal Regulation of Operations Related to Genome Maneuvers. Theoretical & Applied Science. 2018;68(12):376-378. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-57.html
    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. The Place of Acts Regarding to Genetic Engineering in The System of Legal Regulation (Legal Analysis). Theoretical & Applied Science. 2018;68(12):373-375. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-56.html
    Journal Article
    Prince Anya E R. Political economy, stakeholder voices, and saliency: lessons from international policies regulating insurer use of genetic information. Journal of Law and the Biosciences. 2018;5(3):461-494. Available from: https://doi.org/10.1093/jlb/lsz001
    Journal Article
    Pepper Michael S., Dandara Collet, de Vries Jantina, Dhai Amaboo, Labuschaigne Melodie, Mnyongani Freddy, et al. ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa. S. Afr. J. Sci. 2018;114(11/12) Available from: https://www.sajs.co.za/article/view/5822
    Journal Article
    Barlow-Stewart K., Liepins M., Doble A., Otlowski M. How are genetic test results being used by Australian life insurers?. Eur J Hum Genet. 2018;26(9):1248-1256. Available from: https://www.nature.com/articles/s41431-018-0198-z
    Journal Article
    Chen Yongxi, Song Lingqiao. China: concurring regulation of cross-border genomic data sharing for statist control and individual protection. Hum Genet. 2018;137(8):605-615. Available from: http://link.springer.com/10.1007/s00439-018-1903-2
    Journal Article
    Dupras Charles, Song Lingqiao, Saulnier Katie M., Joly Yann. Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination. Front. Genet.. 2018;9:202. Available from: https://www.frontiersin.org/article/10.3389/fgene.2018.00202/full
    Journal Article
    Bombard Yvonne, Heim-Myers Bev. The Genetic Non-Discrimination Act: critical for promoting health and science in Canada. CMAJ. 2018;190(19):E579-E580. Available from: http://www.cmaj.ca/lookup/doi/10.1503/cmaj.180298
    Journal Article
    Rothstein Mark A. GINA at Ten and the Future of Genetic Nondiscrimination Law. Hastings Center Report. 2018;48(3):5-7. Available from: https://onlinelibrary.wiley.com/doi/10.1002/hast.847
    Journal Article
    Wauters Annet, Van Hoyweghen Ine. Concerns about Genetic Discrimination after Regulation: A Qualitative Study of the Situation Regarding BRCA and Huntington’s Disease in Belgium. Laws. 2018;7(2):17. Available from: http://www.mdpi.com/2075-471X/7/2/17
    Journal Article
    Rothstein Mark A. Time to End the Use of Genetic Test Results in Life Insurance Underwriting. J. Law. Med. Ethics. 2018;46(3):794-801. Available from: https://www.cambridge.org/core/product/identifier/S1073110500023007/type/journal_article
    Journal Article
    Tiller Jane, Keogh Louise, Wake Samantha, Delatycki Martin, Otlowski Margaret, Lacaze Paul. Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce. Frontiers in Public Health. 2018;6 Available from: https://www.frontiersin.org/article/10.3389/fpubh.2018.00333
    Journal Article
    Lacaze Paul, Tiller Jane, Ryan Joanne. The Dangers of Direct-to-Consumer Genetic Testing for Alzheimer’s Disease. Bioethical Inquiry. 2017;14(4):585-587. Available from: https://doi.org/10.1007/s11673-017-9817-6
    Journal Article
    Dalpe Gratien, Ngueng Feze Ida, Salman Shahad, Joly Yann, Hagan Julie, Lévesque Emmanuelle, et al. Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers. Frontiers in Genetics. 2017;8 Available from: http://journal.frontiersin.org/article/10.3389/fgene.2017.00128/full
    Journal Article
    Joly Yann, Feze Ida Ngueng, Song Lingqiao, Knoppers Bartha M. Comparative Approaches to Genetic Discrimination: Chasing Shadows?. Trends in Genetics. 2017;33(5):299-302. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0168952517300331
    Journal Article
    Joly Yann, Salman Shahad, Ngueng Feze Ida, Granados Moreno Palmira, Stanton-Jean Michèle, Lacey Jacqueline, et al. DNA Testing for Family Reunification in Canada: Points to Consider. Int. Migration & Integration. 2017;18(2):391-404. Available from: http://link.springer.com/10.1007/s12134-016-0496-7
    Journal Article
    de Paor Aisling. Genetic Discrimination: A Case for a European Legislative Response?. Eur J Health Law. 2017;24(2):135-159. Available from: https://brill.com/view/journals/ejhl/24/2/article-p135_3.xml
    Journal Article
    Joly Yann, Ngueng Feze Ida, Song Lingqiao, Knoppers Bartha Maria. Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?. . 2017; Available from: https://papers.ssrn.com/abstract=2911199
    Journal Article
    Kirkpatrick Brianne E., Rashkin Misha D. Ancestry Testing and the Practice of Genetic Counseling. J Genet Counsel. 2017;26(1):6-20. Available from: http://doi.wiley.com/10.1007/s10897-016-0014-2
    Journal Article
    Pepper M S. Exporting DNA – striking a balance between preventing exploitation and promoting innovation. S Afr Med J. 2017;107(2):106. Available from: http://www.samj.org.za/index.php/samj/article/view/11797
    Journal Article
    Byk Christian. Insurance and genetic tests. Revue générale du droit des assurances. 2017;n° 114e7(2):97. Available from: https://www.labase-lextenso.fr/revue-generale-du-droit-des-assurances/RGA114e7
    Journal Article
    Prince Anya E.R. Insurance Risk Classification in an Era of Genomics: Is a Rational Discrimination Policy Rational?. Neb Law Rev. 2017;96(3):624-687. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6934377/
    Journal Article
    Tiller Jane, Otlowski Margaret, Lacaze Paul. Should Australia Ban the Use of Genetic Test Results in Life Insurance?. Frontiers in Public Health. 2017;5 Available from: https://www.frontiersin.org/article/10.3389/fpubh.2017.00330
    Journal Article
    Newson Ainsley J., Tiller Jane, Keogh Louise A., Otlowski Margaret, Lacaze Paul. Genetics and Insurance in Australia: Concerns around a Self-Regulated Industry. PHG. 2017;20(4):247-256. Available from: https://www.karger.com/Article/FullText/481450
    Report
    Joly Y., Dupras C., Ngueng Feze I., Song L. Genetic Discrimination in Quebec: A flexible and proactive approach to address a complex social issue. 2017. Available from: https://www.genomequebec.com/DATA/PUBLICATION/32_en~v~Genetic_Discrimination_in_Quebec_-_Policy_Brief.pdf
    Journal Article
    Joly Yann, So Derek, Saulnier Katie, Dyke Stephanie O. M. Epigenetics ELSI: Darker Than You Think?. Trends Genet. 2016;32(10):591-592. Available from: https://www.cell.com/trends/genetics/fulltext/S0168-9525(16)30069-5
    Journal Article
    Wauters Annet, Van Hoyweghen Ine. Global trends on fears and concerns of genetic discrimination: a systematic literature review. J Hum Genet. 2016;61(4):275-282. Available from: https://www.nature.com/articles/jhg2015151
    Journal Article
    Lombard Zané, Baine Fiona, Krause Amanda, Lochan Anneline, Macualay Shelley, Spencer Careni, et al. Implications of direct-to-consumer whole-exome sequencing in South Africa. S Afr Med J. 2016;106(2):139. Available from: http://www.samj.org.za/index.php/samj/article/view/10534
    Journal Article
    Rothstein Mark A., Rothstein Laura. How Genetics Might Affect Real Property Rights. J. Law. Med. Ethics. 2016;44(1):216-221. Available from: https://www.cambridge.org/core/product/identifier/S1073110500020866/type/journal_article
    Journal Article
    Rothstein Mark A., Roberts Jessica, Guidotti Tee L. Limiting Occupational Medical Evaluations under the Americans with Disabilities Act and the Genetic Information Nondiscrimination Act. Am. J. Law. Med.. 2015;41(4):523-567. Available from: https://www.cambridge.org/core/product/identifier/S009885880000349X/type/journal_article
    Journal Article
    Rothstein Mark A. Innovations of the Americans With Disabilities Act: Confronting Disability Discrimination in Employment. JAMA. 2015;313(22):2221-2222. Available from: https://doi.org/10.1001/jama.2015.3417
    Journal Article
    Shalkharov Yernar Sailaubekovich, Nakipov Balgabay Isakulovich, International Kazakh Turkish University by name of K.A.Yessevi, Batyrbaev Nurlan Muhtarovich, International Kazakh Turkish University by name of K.A.Yessevi, Urazbaev Kuanyshbek Baimbetovich, et al. Perspective of Theoretical Consideration in the Text of the Article "Cloning of the Person" of the New Criminal Code of the Republic of Kazakhstan from the Position of the International and Foreign Experience of Countries of Western Europe in particular the United Kingdom: Comparative Analysis. Theoretical & Applied Science. 2015;23(03):138-145. Available from: http://www.t-science.org/arxivDOI/2015/03(23)/03(23)_24.html
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    de Paor Aisling, Ferri Delia. Regulating Genetic Discrimination in the European Union: Pushing the EU into Unchartered Territory or Ushering in a New Genomic Era?. European Journal of Law Reform. 2015;17(1):14-32. Available from: http://www.elevenjournals.com/doi/10.5553/EJLR/138723702015017001002
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    Dusipov Erkin Shajaevich, Batyrbaev Nurlan Muhtarovich, International Kazakh-Turkish University by name of H.A.Yessevy Kazakhstan, Uderbaev Nurlybek Nurlanovich, Kazakh Medical University of Continuing Education Kazakhstan, Shalkharov Yernar Sailaubekovich, et al. Applied Aspects of Application of Insurance of Professional Responsibility of Doctor in Medical Conflicts and Affecting Mechanisms on Area of Prosecution in Kazakhstan Republic, Central Asia: Description Approach. Theoretical & Applied Science. 2015;21(01):89-93. Available from: http://www.t-science.org/arxivDOI/2015/01(21)/01(21)_16.html
    Journal Article
    Akmadov Shamuhamet Nurmuhamedovich, Batyrbaev Nurlan Muhtarovich, International Kazakh-Turkish University by name of H.A.Yessevy Kazakhstan, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University by name of H.A.Yessevi. Kazakhstan. Problems of Consumer Protection Legislation in the Sphere of Medical Education System as a Course to Achieve Goal of Correct Connection Between Doctor and Patient in Kazakhstan, Central Asia (Discripting Approach). Theoretical & Applied Science. 2015;21(01):126-128. Available from: http://www.t-science.org/arxivDOI/2015/01(21)/01(21)_21.html
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    Brothers Kyle B, Rothstein Mark A. Ethical, legal and social implications of incorporating personalized medicine into healthcare. Personalized Medicine. 2015;12(1):43-51. Available from: https://www.futuremedicine.com/doi/abs/10.2217/pme.14.65
    Book
    Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Abingdon, Oxon ; New York, NY: Routledge; 2015. Available from: https://www.routledge.com/Genetic-Discrimination-Transatlantic-Perspectives-on-the-Case-for-a-European/Quinn-Paor-Blanck/p/bo...
    Journal Article
    Lane Michelle, Ngueng Feze Ida, Joly Yann. Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors. Journal of Genetic Counseling. 2015;24(6):1022-1036. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1007/s10897-015-9841-9
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    Vives Corrons Joan-Lluis, del Mar Mañú Pereira María, Romeo-Casabona Carlos, Nicolás Pilar, Gulbis Béatrice, Eleftheriou Androulla, et al. Recommendations for Centres of Expertise in Rare Anaemias. The ENERCA White Book. Thalassemia Reports. 2014;4(3):86-90. Available from: https://www.mdpi.com/2039-4365/4/3/4878
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    Prince Anya E. R., Roche Myra I. Genetic information, non-discrimination, and privacy protections in genetic counseling practice. J Genet Couns. 2014;23(6):891-902. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4233176/
    Book Section
    Prince Anya E.R., Watersone M. The Genetic Information Nondiscrimination Act (GINA) of 2008. In: Quinn, Gerard; de Paor, Aisling; Blanck, Peter, editors. Genetic Discrimination: Transatlantic Perspectives on the Case for a European-level Legal Response. 1st. London: Routledge; 2014. p. 300. Available from: https://www.tandfonline.com/doi/full/10.1080/09687599.2015.1075951#:~:text=non%2Ddiscrimination%20regulations.-,Genetic%20Dis...
    Journal Article
    Nicholls Stuart, Joly Yann, Moher Ester, Little Julian. Genetic discrimination and insurance in Canada: Where are we now?. On The Risk. 2014;30:46-52. Available from: https://www.researchgate.net/publication/262138157_Genetic_discrimination_and_insurance_in_Canada_Where_are_we_now
    Journal Article
    Feze Ida, Joly Yann. Can’t Always Get What you Want? Try an Indirect Route you Just Might Get What you Need: A Study on Access to Genetic Data by Canadian Life Insurers. CPPM. 2014;12(1):56-64. Available from: http://www.eurekaselect.com/openurl/content.php?genre=article&issn=1875-6921&volume=12&issue=1&spage=56
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    Joly Yann, Burton Hilary, Knoppers Bartha Maria, Feze Ida Ngueng, Dent Tom, Pashayan Nora, et al. Life insurance: genomic stratification and risk classification. Eur J Hum Genet. 2014;22(5):575-579. Available from: http://www.nature.com/articles/ejhg2013228
    Journal Article
    Lander Jonas, Van Hoyweghen Ine. Streitkultur and the governance of genetic testing and insurance in Germany. New Genetics and Society. 2014;33(1):42-59. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2013.873336
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    Joly Yann, Ngueng Feze Ida, Simard Jacques. Genetic discrimination and life insurance: a systematic review of the evidence. BMC Med. 2013;11(1):25. Available from: http://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-25
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    Rothstein Mark A. Genetic Discrimination in Employment Is Indefensible. Hastings Center Report. 2013;43(6):3-4. Available from: https://onlinelibrary.wiley.com/doi/10.1002/hast.219
    Journal Article
    Hazin Ribhi, Brothers Kyle B., Malin Bradley A., Koenig Barbara A., Sanderson Saskia C., Rothstein Mark A., et al. Ethical, legal, and social implications of incorporating genomic information into electronic health records. Genet Med. 2013;15(10):810-816. Available from: https://www.nature.com/articles/gim2013117
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    Keogh Louise A., Otlowski Margaret F. A. Life insurance and genetic test results: a mutation carrier's fight to achieve full cover. Med. J. Aust.. 2013;199(5) Available from: https://www.mja.com.au/journal/2013/199/5/life-insurance-and-genetic-test-results-mutation-carriers-fight-achieve-full
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    Caulfield Timothy, Chandrasekharan Subhashini, Joly Yann, Cook-Deegan Robert. Harm, hype and evidence: ELSI research and policy guidance. Genome Medicine. 2013;5(3):21. Available from: https://doi.org/10.1186/gm425
    Journal Article
    McClellan Kelly A, Avard Denise, Simard Jacques, Knoppers Bartha M. Personalized medicine and access to health care: potential for inequitable access?. Eur J Hum Genet. 2013;21(2):143-147. Available from: http://www.nature.com/articles/ejhg2012149
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    Prince Anya. Comprehensive Protection of Genetic Information: One Size Privacy or Property Models May Not Fit All. Brooklyn Law Review. 2013;79(1) Available from: https://brooklynworks.brooklaw.edu/blr/vol79/iss1/4
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    Genetic privacy: an evaluation of the ethical and legal landscape. London: Imperial College Press; 2013. Available from: https://www.worldscientific.com/worldscibooks/10.1142/p906
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    Van Hoyweghen Ine, Rebert Lisa. Your genes in insurance: from genetic discrimination to genomic solidarity. Personalized Medicine. 2012;9(8):871-877. Available from: https://www.futuremedicine.com/doi/10.2217/pme.12.96
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    Geelen Els, Horstman Klasien, Marcelis Carlo LM, Doevendans Pieter A, Van Hoyweghen Ine. Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts. Eur J Hum Genet. 2012;20(10):1018-1023. Available from: http://www.nature.com/articles/ejhg201253
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    Bombard Yvonne, Palin JoAnne, Friedman Jan M., Veenstra Gerry, Creighton Susan, Bottorff Joan L., et al. Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington disease. Am. J. Med. Genet.. 2012;159B(2):217-226. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.32016
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    Otlowski M., Taylor S., Bombard Y. Genetic discrimination: international perspectives. Annu Rev Genomics Hum Genet. 2012;13:433-454. Available from: https://www.annualreviews.org/doi/abs/10.1146/annurev-genom-090711-163800
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    Prince Anya E. R., Berkman Benjamin E. When does an illness begin: genetic discrimination and disease manifestation. J Law Med Ethics. 2012;40(3):655-664. Available from: https://journals.sagepub.com/doi/abs/10.1111/j.1748-720X.2012.00696.x
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    Bombard Yvonne, Palin JoAnne, Friedman Jan M., Veenstra Gerry, Creighton Susan, Paulsen Jane S., et al. Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease. Am. J. Med. Genet.. 2011;156(1):19-27. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31130
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    Van Hoyweghen Ine. Taming the wild life of genes by law? Genes reconfiguring solidarity in private insurance. New Genetics and Society. 2010;29(4):431-455. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2010.528190
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    Joly Yann, Braker Maria, Le Huynh Michael. Genetic discrimination in private insurance: global perspectives. New Genetics and Society. 2010;29(4):351-368. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2010.528189
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    Otlowski Margaret, Stranger Mark, Taylor Sandra, Barlow-Stewart Kristine, Treloar Susan. Practices and Attitudes of Australian Employers in Relation to the Use of Genetic Information: Report on a National Study. Comparative Labor Law & Policy Journal. 2010;31(4):637-691. Available from: http://heinonline.org/hol-cgi-bin/get_pdf.cgi?handle=hein.journals/cllpj31§ion=40
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    Williams Janet K., Erwin Cheryl, Juhl Andrew R., Mengeling Michelle, Bombard Yvonne, Hayden Michael R., et al. In their own words: Reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study. Am. J. Med. Genet.. 2010;9999B:n/a-n/a. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31080
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    Erwin Cheryl, Williams Janet K., Juhl Andrew R., Mengeling Michelle, Mills James A., Bombard Yvonne, et al. Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND-HD study. Am. J. Med. Genet.. 2010;9999B:n/a-n/a. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31079
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    Rothstein Mark A. Gina's Beauty is Only Skin Deep. Gene Watch. 2009;22(2):9-12. Available from: https://papers.ssrn.com/abstract=1519975
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    Rothstein Mark A., Cai Yu, Marchant Gary E. Ethical implications of epigenetics research. Nat Rev Genet. 2009;10(4):224-224. Available from: https://www.nature.com/articles/nrg2562
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    Barlow-Stewart Kristine, Taylor Sandra D, Treloar Susan A, Stranger Mark, Otlowski Margaret. Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing.. Genetics in medicine : official journal of the American College of Medical Genetics. 2009;11(3):193-201. Available from: https://www.nature.com/articles/gim200928
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    Rothstein Mark A., Cai Yu, Marchant Gary E. The Ghost in our Genes: Legal and Ethical Implications of Epigenetics. Health Matrix Clevel. 2009;19(1):1-62. Available from: https://asu.pure.elsevier.com/en/publications/the-ghost-in-our-genes-legal-and-ethical-implications-of-epigenet
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    Rothstein Mark A. Putting the Genetic Information Nondiscrimination Act in context. Genetics in Medicine. 2008;10(9):655-656. Available from: https://linkinghub.elsevier.com/retrieve/pii/S1098360021030975
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    Rothstein Mark A. Keeping Your Genes Private. Sci Am. 2008;299(3):64-69. Available from: https://www.scientificamerican.com/article/keeping-your-genes-private
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    Van Hoyweghen Ine, Horstman Klasien. European Practices of Genetic Information and Insurance: Lessons for the Genetic Information Nondiscrimination Act. JAMA. 2008;300(3):326. Available from: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2008.62
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    Taylor S., Treloar S., Barlow-Stewart K., Stranger M., Otlowski M. Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet. 2008;74(1):20-30. Available from: https://onlinelibrary.wiley.com/doi/10.1111/j.1399-0004.2008.01016.x
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    McGuire Amy L., Fisher Rebecca, Cusenza Paul, Hudson Kathy, Rothstein Mark A., McGraw Deven, et al. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008;10(7):495-499. Available from: https://www.nature.com/articles/gim200876
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    Penziner Elizabeth, Williams Janet K., Erwin Cheryl, Bombard Yvonne, Wallis Anne, Beglinger Leigh J., et al. Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease. Am. J. Med. Genet.. 2008;147B(3):320-325. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.30600
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    Bombard Yvonne, Penziner Elizabeth, Suchowersky Oksana, Guttman Mark, Paulsen Jane S, Bottorff Joan L, et al. Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease. Eur J Hum Genet. 2008;16(3):279-289. Available from: http://www.nature.com/articles/5201937
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    Rothstein Mark A. Currents in Contemporary Ethics: Is GINA Worth the Wait?. Journal of Law, Medicine & Ethics. 2008;36(1):174-178. Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/currents-in-contemporary-ethics/AA8B630E51...
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    Rothstein Mark A. GINA, the ADA, and Genetic Discrimination in Employment. J Law Med Ethics. 2008;36(4):837-840. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3035561/
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    Otlowski Margaret, Taylor Sandra, Barlowstewart Kristine, Stranger Mark, Treloar Susan. The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings of an Empirical Study. International Journal of Discrimination and the Law. 2007;9(1):3-35. Available from: https://doi.org/10.1177/135822910700900102
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    Van Hoyweghen Ine, Horstman Klasien, Schepers Rita. Genetic ‘Risk Carriers’ and Lifestyle ‘Risk Takers’. Which Risks Deserve our Legal Protection in Insurance?. Health Care Anal. 2007;15(3):179-193. Available from: https://link.springer.com/10.1007/s10728-006-0041-5
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    Otlowski Margaret, Barlow-Stewart Kristine, Taylor Sandra, Stranger Mark, Treloar Susan. Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003.. Journal of law and medicine. 2007;14(3):367-396. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/investigating-genetic-discrimination-au...
    Book Section
    Otlowski M, Skene L. Consumer Experiences and Predictive Genetic Testing. In: Stranger, M, editor. Human Biotechnology and Public Trust: Trends, Perceptions and Regulation. Centre for Law and Genetics; 2007. Available from: https://eprints.utas.edu.au/5980/
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    Taylor Sandra, Treloar Susan, Barlow-Stewart Kristine, Otlowski Margaret, Stranger Mark. Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients regarding Coercion to Test, Insurance and Employment. Australian Journal of Emerging Technologies and Society. 2007;5(2):63-83. Available from: https://espace.library.uq.edu.au/view/UQ:134802
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    Otlowski Margaret. ‘Genetic Privacy, Discrimination and Insurance’. In: Disputes and Dilemmas in Health Law. Federation Press; 2006. Available from: https://books.google.ca/books/about/Disputes_and_Dilemmas_in_Health_Law.html?id=61JVEXzkcygC&redir_esc=y
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    Rothstein Mark A., Talbott Meghan K. The Expanding Use of DNA in Law Enforcement: What Role for Privacy?. Journal of Law, Medicine & Ethics. 2006;34(2):153-164. Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/abs/expanding-use-of-dna-in-law-enforcemen...
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    Otlowski Margaret. Use of Genetic Test Information in Life Insurance: An Evaluation of Different Regulatory Models. Journal of International Biotechnology Law. 2005;2(3):99-104. Available from: https://www.degruyter.com/document/doi/10.1515/jibl.2005.2.3.99/html
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    Freishtat R. J., Joly Y., Avard D., Ellenberg M., Knoppers B. M. Genetic Discrimination By Insurers As A Result Of Genetic Research And Testing: A Comparison Of National Policies. J Investig Med. 2005;53(2):S396.2-S396. Available from: https://jim.bmj.com/lookup/doi/10.2310/6650.2005.00205.52
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    Otlowski Margaret. Exploring the concept of genetic discrimination.. Journal of bioethical inquiry. 2005;2(3):165-176. Available from: https://link.springer.com/article/10.1007/BF02448597
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    Barlow-Stewart S., Taylor S., Otlowski M. F. A. Knowing Your Genes. In: Australian Social Attitudes: The First Report. University of New South Wales Press; 2005. p. 204-219. Available from: http://ecite.utas.edu.au/37733
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    Taylor Sandra D, Otlowski Margaret F, Barlow-Stewart Kristine K, Treloar Susan A, Stranger Mark, Chenoweth Kellie. Investigating genetic discrimination in Australia: opportunities and challenges in the early stages.. New genetics and society. 2004;23(2):225-239. Available from: https://www.tandfonline.com/doi/abs/10.1080/1463677042000237053
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    Otlowski Margaret. An exploration of the legal and socio-ethical implications of predictive genetic testing of children.. Australian journal of family law. 2004;18(2):147-169. Available from: https://pubmed.ncbi.nlm.nih.gov/17058338/
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    Knoppers Bartha M., Joly Yann. Physicians, genetics and life insurance. CMAJ. 2004;170(9):1421-1423. Available from: https://www.cmaj.ca/content/170/9/1421
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    Treloar Susan, Taylor Sandra, Otlowski Margaret, Barlow-Stewart Kristine, Stranger Mark, Chenoweth Kellie. Methodological considerations in the study of genetic discrimination.. Community genetics. 2004;7(4):161-168. Available from: https://www.karger.com/Article/Fulltext/82254
    Book
    Genetics and life insurance: medical underwriting and social policy. Cambridge, Mass: MIT Press; 2004. (Basic bioethics). Available from: https://mitpress.mit.edu/books/genetics-and-life-insurance
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    Knoppers Bartha Maria, Lemmens Trudo, Joly Yann, Godard Béatrice, Avard Denise, Clark Teren, et al. Genetics and Life Insurance in Canada: Points to Consider. CMAJ : Canadian Medical Association Journal. 2004;170(9) Available from: https://papyrus.bib.umontreal.ca/xmlui/handle/1866/76
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    Joly Yann, Knoppers Bartha M, Godard Béatrice. Genetic information and life insurance: a ‘real’ risk?. Eur J Hum Genet. 2003;11(8):561-564. Available from: http://www.nature.com/articles/5200998
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    Otlowski Margaret F., Taylor Sandra D., Barlow-Stewart Kristine K. Genetic discrimination: Too few data. Eur J Hum Genet. 2003;11(1):1-2. Available from: https://www.nature.com/articles/5200910
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    Otlowski Margaret. Genetic discrimination: meeting the challenges of an emerging issue.. The University of New South Wales law journal. 2003;26(3):764-769. Available from: https://www.unswlawjournal.unsw.edu.au/article/genetic-discrimination-meeting-the-challenges-of-an-emerging-issue/
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    Otlowski Margaret F, Taylor Sandra D, Barlow-Stewart Kristine K. Major study commencing into genetic discrimination in Australia.. Journal of law and medicine. 2002;10(1):41-48. Available from: https://europepmc.org/article/med/12242882
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    Otlowski Margaret. Genetic Testing and Insurance: The Case for Regulation. Agenda. 2002;9(4):335-354. Available from: https://www.jstor.org/stable/43199221
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    Otlowski Margaret F, Taylor Sandra D, Barlow-Stewart Kristine K. Australian empirical study into genetic discrimination.. Genetics in medicine : official journal of the American College of Medical Genetics. 2002;4(5):392-395. Available from: https://www.nature.com/articles/gim200258
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    Otlowski Margaret. Employers' use of genetic test information: is there a need for regulation. Journal of Law and. 2002;8:1-39. Available from: http://ecite.utas.edu.au/24578
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    Rothstein Mark A., Anderlik Mary R. What is genetic discrimination, and when and how can it be prevented?. Genetics in Medicine. 2001;3(5):354-358. Available from: https://www.gimjournal.org/article/S1098-3600(21)02803-3/fulltext
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    Otlowski Margaret. Avoiding Genetic Discrimination in Insurance: An Exploration of the Legality and Ethics of Precautionary Measures in Anticipation of Unfavourable Test Outcomes. Monash Bioethics Review. 2001;20(1):24–32. Available from: https://philpapers.org/rec/OTLAGD
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    Otlowski Margaret. Implications of genetic testing for Australian insurance law and practice. Hobart, Tas: School of Law, University of Tasmania ; Faculty of Law, University of Melbourne; 2001. (Occasional paper / Centre for Law and Genetics, no. 1). Available from: https://catalogue.nla.gov.au/Record/3424850
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    Anderlik Mary R., Rothstein Mark A. Privacy and Confidentiality of Genetic Information: What Rules for the New Science?. Annual Review of Genomics and Human Genetics. 2001;2(1):401-433. Available from: https://doi.org/10.1146/annurev.genom.2.1.401
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    Margaret Otlowski. Resolving the Conundrum: Should Insurers be Entitled to Access Genetic Test Information?. Insurance Law Journal. 2000;11:193-215.
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    Rothstein Mark A. Genetic Privacy and Confidentiality: Why They are So Hard to Protect. J. Law. Med. Ethics. 1998;26(3):198-204. Available from: https://www.cambridge.org/core/product/identifier/S107311050001305X/type/journal_article
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    Genetic secrets: protecting privacy and confidentiality in the genetic era. New Haven: Yale University Press; 1997. Available from: https://yalebooks.yale.edu/book/9780300080636/genetic-secrets
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    Greenbaum Dov, Gerstein Mark. GATTACA is still pertinent 25 years later. Nat Genet. 2022;:1-3. Available from: https://www.nature.com/articles/s41588-022-01242-5

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    Joly Yann, Dalpe Gratien. Genetic discrimination still casts a large shadow in 2022. Eur J Hum Genet. 2022;:1-3. Available from: https://www.nature.com/articles/s41431-022-01194-8

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    Dupras Charles, Knoppers Terese, Palmour Nicole, Beauchamp Elisabeth, Liosi Stamatina, Siebert Reiner, et al. Researcher perspectives on ethics considerations in epigenetics: an international survey. Clin Epigenet. 2022;14(1):110. Available from: https://doi.org/10.1186/s13148-022-01322-7

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    Cowan James S., Kagedan Barbara Laine, Graham Gail E., Heim-Myers Bev, Bombard Yvonne. Health care implications of the Genetic Non-Discrimination Act: Protection for Canadians’ genetic information. Canadian Family Physician. 2022;68(9):643-646. Available from: https://www.cfp.ca/content/68/9/643

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    Dowling Grace, Tiller Jane, McInerney-Leo Aideen, Belcher Andrea, Haining Casey, Barlow-Stewart Kristine, et al. Health professionals’ views and experiences of the Australian moratorium on genetic testing and life insurance: A qualitative study. Eur J Hum Genet. 2022;:1-7. Available from: https://www.nature.com/articles/s41431-022-01150-6

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    Leib-Neri Marisa A., Prince Anya E. R. Privacy and the Genetic Community. The American Journal of Bioethics. 2022;22(7):70-72. Available from: https://www.tandfonline.com/doi/full/10.1080/15265161.2022.2075972

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    Prince Anya E. R., Suter Sonia M., Uhlmann Wendy R., Scherer Aaron M. The goldilocks conundrum: Disclosing discrimination risks in informed consent. Journal of Genetic Counseling. 2022;n/a(n/a) Available from: https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1613

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    Huerne Katherine, Palmour Nicole, Wu Angela Ruohao, Beck Stephan, Berner Alison, Siebert Reiner, et al. Auditing the Editor: A Review of Key Translational Issues in Epigenetic Editing. The CRISPR Journal. 2022; Available from: https://www.liebertpub.com/doi/10.1089/crispr.2021.0094

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    Beauvais M J S, Knoppers B M, Boscarino C. Navigating the ethical maze of genomics in Canada’s military. BMJ Mil Health. 2021;:e001954. Available from: https://militaryhealth.bmj.com/lookup/doi/10.1136/bmjmilitary-2021-001954

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    Dupras Charles, Bunnik Eline M. Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases. The American Journal of Bioethics. 2021;21(12):46-64. Available from: https://doi.org/10.1080/15265161.2020.1863516

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    Lenartz Andrea, Scherer Aaron M., Uhlmann Wendy R., Suter Sonia M., Anderson Hartley Colleen, Prince Anya E. R. The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage. Genetics in Medicine. 2021;23(12):2324-2334. Available from: https://www.nature.com/articles/s41436-021-01268-w

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    Knoppers Terese, Beauchamp Elisabeth, Dewar Ken, Kimmins Sarah, Bourque Guillaume, Joly Yann, et al. The omics of our lives: practices and policies of direct-to-consumer epigenetic and microbiomic testing companies. New Genetics and Society. 2021;0(0):1-29. Available from: https://doi.org/10.1080/14636778.2021.1997576

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    Prince Anya E. R., Uhlmann Wendy R., Suter Sonia M., Scherer Aaron M. Genetic testing and insurance implications: Surveying the US general population about discrimination concerns and knowledge of the Genetic Information Nondiscrimination Act (GINA). Risk Management and Insurance Review. 2021;n/a(n/a) Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/rmir.12195

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    Polygenic Risk Score Task Force of the International Common Disease Alliance, Adeyemo Adebowale, Balaconis Mary K., Darnes Deanna R., Fatumo Segun, Granados Moreno Palmira, et al. Responsible use of polygenic risk scores in the clinic: potential benefits, risks and gaps. Nat Med. 2021; Available from: https://www.nature.com/articles/s41591-021-01549-6

    Journal Article
    Joly Yann, Huerne Katherine, Arych Mykhailo, Bombard Yvonne, De Paor Aisling, Dove Edward S., et al. The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination. Trends in Genetics. 2021;37(11):951-954. Available from: https://www.sciencedirect.com/science/article/pii/S0168952521002286

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    Knoppers Bartha Maria, Beauvais Michael J S. Three decades of genetic privacy: a metaphoric journey. Human Molecular Genetics. 2021;30(R2):R156-R160. Available from: https://academic.oup.com/hmg/article/30/R2/R156/6307333

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    Arych Mykhailo, Levon Mariia, Arych Halyna, Kulynych Yurii. Genetic Testing in Insurance Implications for Non-EU Insurance Markets as a Part of the European Integration Process. OJMNE. 2021;(36):25-52. Available from: http://neweurope.centre.ubbcluj.ro/wp-content/uploads/2021/09/2.pdf

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    Tiller Jane M., Keogh Louise A., McInerney-Leo Aideen M., Belcher Andrea, Barlow-Stewart Kristine, Boughtwood Tiffany, et al. A step forward, but still inadequate: Australian health professionals’ views on the genetics and life insurance moratorium. Journal of Medical Genetics. 2021; Available from: https://jmg.bmj.com/content/early/2021/09/20/jmedgenet-2021-107989

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    Alarie Samuel, Hagan Julie, Dalpe Gratien, Faraji Sina, Mbuya-Bienge Cynthia, Nabi Hermann, et al. Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data. Journal of Personalized Medicine. 2021;11(8):726. Available from: https://www.mdpi.com/2075-4426/11/8/726

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    Tiller Jane, Delatycki Martin B. Genetic discrimination in life insurance: a human rights issue. Journal of Medical Ethics. 2021;47(7):484-485. Available from: https://jme.bmj.com/content/47/7/484

    Journal Article
    Kim Hannah, Ho Calvin W. L., Ho Chih-Hsing, Athira P. S., Kato Kazuto, De Castro Leonardo, et al. Genetic discrimination: introducing the Asian perspective to the debate. npj Genom. Med.. 2021;6(1):1-8. Available from: https://www.nature.com/articles/s41525-021-00218-4

    Journal Article
    Golinghorst Dexter, De Paor Aisling, Joly Yann, Macdonald Angus S., Otlowski Margaret, Peter Richard, et al. Anti-selection & Genetic Testing in Insurance: An Interdisciplinary Perspective. . 2021; Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/antiselection-genetic-testing-in-insurance...

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    Wauters Annet, Van Hoyweghen Ine. Normalising life at risk of Huntington’s disease. A qualitative study of backgrounds and coping strategies of fears of genetic discrimination. Eur J Hum Genet. 2021;29(6):940-948. Available from: http://www.nature.com/articles/s41431-021-00822-z

    Journal Article
    Tiller Jane, McInerney-Leo Aideen, Belcher Andrea, Boughtwood Tiffany, Gleeson Penny, Delatycki Martin, et al. Study protocol: the Australian genetics and life insurance moratorium—monitoring the effectiveness and response (A-GLIMMER) project. BMC Medical Ethics. 2021;22(1):63. Available from: https://doi.org/10.1186/s12910-021-00634-2

    Journal Article
    Joly Yann, Dalpe Gratien, Gallois Hortense, Knoppers Bartha Maria, Turp Daniel. Erring In Law and In Fact: The Supreme Court of Canada’s Reference Re Genetic Non-Discrimination Act. Canadian Bar Review. 2021;99(1):172-192. Available from: https://cbr.cba.org/index.php/cbr/article/view/4662

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    Tiller Jane, Winship Ingrid, Otlowski Margaret FA, Lacaze Paul A. Monitoring the genetic testing and life insurance moratorium in Australia: a national research project. Medical Journal of Australia. 2021;214(4):157. Available from: https://onlinelibrary.wiley.com/doi/10.5694/mja2.50922

    Journal Article
    Mbuya Bienge Cynthia, Pashayan Nora, Brooks Jennifer D., Dorval Michel, Chiquette Jocelyne, Eloy Laurence, et al. Women's Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada. J Pers Med. 2021;11(2) Available from: https://www.mdpi.com/2075-4426/11/2/95

    Journal Article
    Rothstein Mark A. Can Genetic Nondiscrimination Laws Save Lives?. Hastings Center Report. 2021;51(1):6-7. Available from: http://doi.wiley.com/10.1002/hast.1204

    Journal Article
    Audrey Lebret, Timo Minssen. Digital Health, Artificial Intelligence and Accessibility to Health Care in Denmark. European Human Rights Law Review. 2021;(1):39-49. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fdigital-health-artificial-intelligence-and-accessibility-...

    Journal Article
    Anderson Jarrod, Lewis Anna, Prince Anya. The Problems with Patchwork: State Approaches to Regulating Insurer Use of Genetic Information. DePaul J. Health Care L.. 2021;22(1):1. Available from: https://via.library.depaul.edu/jhcl/vol22/iss1/1/?utm_source=via.library.depaul.edu%2Fjhcl%2Fvol22%2Fiss1%2F1&utm_medium=PDF&...

    Journal Article
    Dalpe Gratien, Pinkesz Miriam, Oliviero Elisabeth, Tolymbek Maria, Joly Yann. Genetic discrimination views in online discussion forums: Perspectives from Canadian forumites. Journal of Genetic Counseling. 2021;00:1-16. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1002/jgc4.1427

    Journal Article
    Dalpe Gratien, Pinkesz Miriam, Marrocco Gabriel, Joly Yann. Les enjeux québécois de la discrimination génétique : l’expérience d’un forum en ligne. Les ateliers de l'éthique / The Ethics Forum. 2021;15(1-2):4-38. Available from: https://doi.org/10.7202/1077527ar

    Journal Article
    Golinghorst Dexter R., Prince Anya E. R. A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27. J Genet Couns. 2020;29(6):928-935. Available from: https://pubmed.ncbi.nlm.nih.gov/31850620/

    Journal Article
    Rothstein Mark A., Brothers Kyle B. Banning Genetic Discrimination in Life Insurance — Time to Follow Florida’s Lead. N Engl J Med. 2020;383(22):2099-2101. Available from: http://www.nejm.org/doi/10.1056/NEJMp2024123

    Journal Article
    Joly Yann, Dupras Charles, Pinkesz Miriam, Tovino Stacey A., Rothstein Mark A. Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination. Annu. Rev. Genom. Hum. Genet.. 2020;21(1):491-507. Available from: https://www.annualreviews.org/doi/10.1146/annurev-genom-111119-011436

    Book Section
    Minssen Timo. Denmark. In: AI, Big Data and Machine Learning. 2nd edition. London: Global Legal Group Ltd; 2020. p. 113-128. Available from: https://www.acc.com/sites/default/files/resources/upload/GLI-AIML20_E-Edition.pdf

    Journal Article
    Joly Yann, Dalpe Gratien, Dupras Charles, Bévière-Boyer Bénédicte, de Paor Aisling, Dove Edward S., et al. Establishing the International Genetic Discrimination Observatory. Nat Genet. 2020;52(5):466-468. Available from: https://www.nature.com/articles/s41588-020-0606-5

    Journal Article
    Dupras Charles, Joly Yann, Rial-Sebbag Emmanuelle. Human rights in the postgenomic era: Challenges and opportunities arising with epigenetics. Social Science Information. 2020;59(1):12-34. Available from: http://journals.sagepub.com/doi/10.1177/0539018419900139

    Journal Article
    Phillips Mark, Molnár-Gábor Fruzsina, Korbel Jan O., Thorogood Adrian, Joly Yann, Chalmers Don, et al. Genomics: data sharing needs an international code of conduct. Nature. 2020;578(7793):31-33. Available from: http://www.nature.com/articles/d41586-020-00082-9

    Journal Article
    Tiller Jane, Morris Susan, Rice Toni, Barter Krystal, Riaz Moeen, Keogh Louise, et al. Genetic discrimination by Australian insurance companies: a survey of consumer experiences. European Journal of Human Genetics : EJHG. 2020;28(1):108-113. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/genetic-discrimination-australian-insur...

    Book Section
    Joly Yann, Marrocco Gabriel. Regulating the Use of Genetic Testing by Insurers and Employers in the Province of Quebec: Is the Genetic Non-Discrimination Act Really Necessary?. In: Khoury, Lara; Blackett, Adelle; Vanhonnaeker, Lukas, editors. Genetic Testing and the Governance of Risk in the Contemporary Economy: Comparative Reflections in the Insurance and Employment Law Contexts. Cham: Springer International Publishing; 2020. p. 269-292. Available from: https://doi.org/10.1007/978-3-030-43699-5_12

    Book Section
    Byk Christian. L’utilisation des tests génétiques dans le domaine de l’assurance en droit français et européen : une affaire d’assurance et de politique publique. In: Khoury, Lara; Blackett, Adelle; Vanhonnaeker, Lukas, editors. Genetic Testing and the Governance of Risk in the Contemporary Economy: Comparative Reflections in the Insurance and Employment Law Contexts. Cham: Springer International Publishing; 2020. p. 193-220. Available from: http://link.springer.com/10.1007/978-3-030-43699-5

    Journal Article
    Rothstein Mark A. Predictive Health Information and Employment Discrimination under the ADA and GINA. J. Law. Med. Ethics. 2020;48(3):595-602. Available from: https://www.cambridge.org/core/product/identifier/S1073110500026772/type/journal_article

    Journal Article
    Prince Anya E R, Schwarcz Daniel. Proxy Discrimination in the Age of Artificial Intelligence and Big Data. Iowa Law Review. 2020;105:62. Available from: https://scholarship.law.umn.edu/cgi/viewcontent.cgi?article=1695&context=faculty_articles

    Journal Article
    Gerke Sara, Minssen Timo, Cohen Glenn. Ethical and legal challenges of artificial intelligence-driven healthcare. Artificial Intelligence in Healthcare. 2020;:295-336. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7332220/

    Journal Article
    Bévière-Boyer Bénédicte. Réflexions éthiques et juridiques sur la modification génétique constitutionnelle des cellules germinales humaines. Revue générale de droit médical. 2020;(77):16. Available from: https://www.bnds.fr/revue/rgdm/rgdm-77/reflexions-ethiques-et-juridiques-sur-la-modification-genetique-constitutionnelle-des-...

    Journal Article
    Nicolás Pilar. Obtencion y Utilizacion de Datos Geneticos en la Contratacion de Seguros. La Dificil Concrecion de la Prohibicion de Discriminacion. Revista da Faculdade Mineira de Direito. 2019;22(43) Available from: http://periodicos.pucminas.br/index.php/Direito/article/view/21250

    Journal Article
    Clayton Ellen Wright, Evans Barbara J, Hazel James W, Rothstein Mark A. The law of genetic privacy: applications, implications, and limitations. Journal of Law and the Biosciences. 2019;6(1):1-36. Available from: https://doi.org/10.1093/jlb/lsz007

    Journal Article
    Joly Yann, Dalpe Gratien, Pinkesz Miriam. Is Genetic Discrimination Back on the Radar? A Commentary on the Recent Court of Appeal Reference Decision on the Genetic Non- Discrimination Act (GNDA). Canadian Journal of Bioethics. 2019;2(2):94-96. Available from: https://doi.org/10.7202/1064941ar

    Journal Article
    Dupras Charles, Beck Stephan, Rothstein Mark A, Berner Alison, Saulnier Katie M, Pinkesz Miriam, et al. Potential (mis)use of epigenetic age estimators by private companies and public agencies: human rights law should provide ethical guidance. Environmental Epigenetics. 2019;5(3):dvz018. Available from: https://doi.org/10.1093/eep/dvz018

    Journal Article
    Prince Anya E.R. Comparative perspectives: regulating insurer use of genetic information. Eur J Hum Genet. 2019;27(3):340-348. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6460564/

    Journal Article
    Otlowski Margaret, Barlow-Stewart Kristine, Lacaze Paul, Tiller Jane. Genetic testing and insurance in Australia.. Australian journal of general practice. 2019;48(3):96-99. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/genetic-testing-insurance-australia/doc...

    Journal Article
    Katharina O Cathaoir. In Search of Solidarity: Personalised Medicine in Denmark. Nordisk socialrättslig tidskrift. 2019;(21-22):65-95. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fin-search-of-solidarity-personalised-medicine-in-denmark(...

    Journal Article
    Katharina O Cathaoir. Personlig medicin - en udfordring for patienters rettigheder?. Juristen. 2019;(6):219-231. Available from: https://jura.ku.dk/english/staff/research/?pure=en%2Fpublications%2Fin-search-of-solidarity-personalised-medicine-in-denmark(...

    Journal Article
    Otlowski Margaret, Tiller Jane, Barlow -Stewart Kristine, Lacaze Paul. Genetic testing and insurance in Australia. Australian Journal of General Practice. 2019;48(3):96-99. Available from: https://search.informit.org/doi/abs/10.3316/INFORMIT.245625531942179

    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. The Role of Human Genome Related Legal Study Development. Theoretical & Applied Science. 2018;68(12):290-292. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-43.html

    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. System of Legal Regulation of Operations Related to Genome Maneuvers. Theoretical & Applied Science. 2018;68(12):376-378. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-57.html

    Journal Article
    Nartai Azhar, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University after H.A.Yessevi, Bitemirov Kairat Turlybaevich, International Kazakh-Turkish University after H.A.Yessevi. The Place of Acts Regarding to Genetic Engineering in The System of Legal Regulation (Legal Analysis). Theoretical & Applied Science. 2018;68(12):373-375. Available from: http://www.t-science.org/arxivDOI/2018/12-68/12-68-56.html

    Journal Article
    Prince Anya E R. Political economy, stakeholder voices, and saliency: lessons from international policies regulating insurer use of genetic information. Journal of Law and the Biosciences. 2018;5(3):461-494. Available from: https://doi.org/10.1093/jlb/lsz001

    Journal Article
    Pepper Michael S., Dandara Collet, de Vries Jantina, Dhai Amaboo, Labuschaigne Melodie, Mnyongani Freddy, et al. ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa. S. Afr. J. Sci. 2018;114(11/12) Available from: https://www.sajs.co.za/article/view/5822

    Journal Article
    Barlow-Stewart K., Liepins M., Doble A., Otlowski M. How are genetic test results being used by Australian life insurers?. Eur J Hum Genet. 2018;26(9):1248-1256. Available from: https://www.nature.com/articles/s41431-018-0198-z

    Journal Article
    Chen Yongxi, Song Lingqiao. China: concurring regulation of cross-border genomic data sharing for statist control and individual protection. Hum Genet. 2018;137(8):605-615. Available from: http://link.springer.com/10.1007/s00439-018-1903-2

    Journal Article
    Dupras Charles, Song Lingqiao, Saulnier Katie M., Joly Yann. Epigenetic Discrimination: Emerging Applications of Epigenetics Pointing to the Limitations of Policies Against Genetic Discrimination. Front. Genet.. 2018;9:202. Available from: https://www.frontiersin.org/article/10.3389/fgene.2018.00202/full

    Journal Article
    Bombard Yvonne, Heim-Myers Bev. The Genetic Non-Discrimination Act: critical for promoting health and science in Canada. CMAJ. 2018;190(19):E579-E580. Available from: http://www.cmaj.ca/lookup/doi/10.1503/cmaj.180298

    Journal Article
    Rothstein Mark A. GINA at Ten and the Future of Genetic Nondiscrimination Law. Hastings Center Report. 2018;48(3):5-7. Available from: https://onlinelibrary.wiley.com/doi/10.1002/hast.847

    Journal Article
    Wauters Annet, Van Hoyweghen Ine. Concerns about Genetic Discrimination after Regulation: A Qualitative Study of the Situation Regarding BRCA and Huntington’s Disease in Belgium. Laws. 2018;7(2):17. Available from: http://www.mdpi.com/2075-471X/7/2/17

    Journal Article
    Rothstein Mark A. Time to End the Use of Genetic Test Results in Life Insurance Underwriting. J. Law. Med. Ethics. 2018;46(3):794-801. Available from: https://www.cambridge.org/core/product/identifier/S1073110500023007/type/journal_article

    Journal Article
    Tiller Jane, Keogh Louise, Wake Samantha, Delatycki Martin, Otlowski Margaret, Lacaze Paul. Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce. Frontiers in Public Health. 2018;6 Available from: https://www.frontiersin.org/article/10.3389/fpubh.2018.00333

    Journal Article
    Lacaze Paul, Tiller Jane, Ryan Joanne. The Dangers of Direct-to-Consumer Genetic Testing for Alzheimer’s Disease. Bioethical Inquiry. 2017;14(4):585-587. Available from: https://doi.org/10.1007/s11673-017-9817-6

    Journal Article
    Dalpe Gratien, Ngueng Feze Ida, Salman Shahad, Joly Yann, Hagan Julie, Lévesque Emmanuelle, et al. Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers. Frontiers in Genetics. 2017;8 Available from: http://journal.frontiersin.org/article/10.3389/fgene.2017.00128/full

    Journal Article
    Joly Yann, Feze Ida Ngueng, Song Lingqiao, Knoppers Bartha M. Comparative Approaches to Genetic Discrimination: Chasing Shadows?. Trends in Genetics. 2017;33(5):299-302. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0168952517300331

    Journal Article
    Joly Yann, Salman Shahad, Ngueng Feze Ida, Granados Moreno Palmira, Stanton-Jean Michèle, Lacey Jacqueline, et al. DNA Testing for Family Reunification in Canada: Points to Consider. Int. Migration & Integration. 2017;18(2):391-404. Available from: http://link.springer.com/10.1007/s12134-016-0496-7

    Journal Article
    de Paor Aisling. Genetic Discrimination: A Case for a European Legislative Response?. Eur J Health Law. 2017;24(2):135-159. Available from: https://brill.com/view/journals/ejhl/24/2/article-p135_3.xml

    Journal Article
    Joly Yann, Ngueng Feze Ida, Song Lingqiao, Knoppers Bartha Maria. Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?. . 2017; Available from: https://papers.ssrn.com/abstract=2911199

    Journal Article
    Kirkpatrick Brianne E., Rashkin Misha D. Ancestry Testing and the Practice of Genetic Counseling. J Genet Counsel. 2017;26(1):6-20. Available from: http://doi.wiley.com/10.1007/s10897-016-0014-2

    Journal Article
    Pepper M S. Exporting DNA – striking a balance between preventing exploitation and promoting innovation. S Afr Med J. 2017;107(2):106. Available from: http://www.samj.org.za/index.php/samj/article/view/11797

    Journal Article
    Byk Christian. Insurance and genetic tests. Revue générale du droit des assurances. 2017;n° 114e7(2):97. Available from: https://www.labase-lextenso.fr/revue-generale-du-droit-des-assurances/RGA114e7

    Journal Article
    Prince Anya E.R. Insurance Risk Classification in an Era of Genomics: Is a Rational Discrimination Policy Rational?. Neb Law Rev. 2017;96(3):624-687. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6934377/

    Journal Article
    Tiller Jane, Otlowski Margaret, Lacaze Paul. Should Australia Ban the Use of Genetic Test Results in Life Insurance?. Frontiers in Public Health. 2017;5 Available from: https://www.frontiersin.org/article/10.3389/fpubh.2017.00330

    Journal Article
    Newson Ainsley J., Tiller Jane, Keogh Louise A., Otlowski Margaret, Lacaze Paul. Genetics and Insurance in Australia: Concerns around a Self-Regulated Industry. PHG. 2017;20(4):247-256. Available from: https://www.karger.com/Article/FullText/481450

    Report
    Joly Y., Dupras C., Ngueng Feze I., Song L. Genetic Discrimination in Quebec: A flexible and proactive approach to address a complex social issue. 2017. Available from: https://www.genomequebec.com/DATA/PUBLICATION/32_en~v~Genetic_Discrimination_in_Quebec_-_Policy_Brief.pdf

    Journal Article
    Joly Yann, So Derek, Saulnier Katie, Dyke Stephanie O. M. Epigenetics ELSI: Darker Than You Think?. Trends Genet. 2016;32(10):591-592. Available from: https://www.cell.com/trends/genetics/fulltext/S0168-9525(16)30069-5

    Journal Article
    Wauters Annet, Van Hoyweghen Ine. Global trends on fears and concerns of genetic discrimination: a systematic literature review. J Hum Genet. 2016;61(4):275-282. Available from: https://www.nature.com/articles/jhg2015151

    Journal Article
    Lombard Zané, Baine Fiona, Krause Amanda, Lochan Anneline, Macualay Shelley, Spencer Careni, et al. Implications of direct-to-consumer whole-exome sequencing in South Africa. S Afr Med J. 2016;106(2):139. Available from: http://www.samj.org.za/index.php/samj/article/view/10534

    Journal Article
    Rothstein Mark A., Rothstein Laura. How Genetics Might Affect Real Property Rights. J. Law. Med. Ethics. 2016;44(1):216-221. Available from: https://www.cambridge.org/core/product/identifier/S1073110500020866/type/journal_article

    Journal Article
    Rothstein Mark A., Roberts Jessica, Guidotti Tee L. Limiting Occupational Medical Evaluations under the Americans with Disabilities Act and the Genetic Information Nondiscrimination Act. Am. J. Law. Med.. 2015;41(4):523-567. Available from: https://www.cambridge.org/core/product/identifier/S009885880000349X/type/journal_article

    Journal Article
    Rothstein Mark A. Innovations of the Americans With Disabilities Act: Confronting Disability Discrimination in Employment. JAMA. 2015;313(22):2221-2222. Available from: https://doi.org/10.1001/jama.2015.3417

    Journal Article
    Shalkharov Yernar Sailaubekovich, Nakipov Balgabay Isakulovich, International Kazakh Turkish University by name of K.A.Yessevi, Batyrbaev Nurlan Muhtarovich, International Kazakh Turkish University by name of K.A.Yessevi, Urazbaev Kuanyshbek Baimbetovich, et al. Perspective of Theoretical Consideration in the Text of the Article "Cloning of the Person" of the New Criminal Code of the Republic of Kazakhstan from the Position of the International and Foreign Experience of Countries of Western Europe in particular the United Kingdom: Comparative Analysis. Theoretical & Applied Science. 2015;23(03):138-145. Available from: http://www.t-science.org/arxivDOI/2015/03(23)/03(23)_24.html

    Journal Article
    de Paor Aisling, Ferri Delia. Regulating Genetic Discrimination in the European Union: Pushing the EU into Unchartered Territory or Ushering in a New Genomic Era?. European Journal of Law Reform. 2015;17(1):14-32. Available from: http://www.elevenjournals.com/doi/10.5553/EJLR/138723702015017001002

    Journal Article
    Dusipov Erkin Shajaevich, Batyrbaev Nurlan Muhtarovich, International Kazakh-Turkish University by name of H.A.Yessevy Kazakhstan, Uderbaev Nurlybek Nurlanovich, Kazakh Medical University of Continuing Education Kazakhstan, Shalkharov Yernar Sailaubekovich, et al. Applied Aspects of Application of Insurance of Professional Responsibility of Doctor in Medical Conflicts and Affecting Mechanisms on Area of Prosecution in Kazakhstan Republic, Central Asia: Description Approach. Theoretical & Applied Science. 2015;21(01):89-93. Available from: http://www.t-science.org/arxivDOI/2015/01(21)/01(21)_16.html

    Journal Article
    Akmadov Shamuhamet Nurmuhamedovich, Batyrbaev Nurlan Muhtarovich, International Kazakh-Turkish University by name of H.A.Yessevy Kazakhstan, Shalkharov Yernar Sailaubekovich, International Kazakh-Turkish University by name of H.A.Yessevi. Kazakhstan. Problems of Consumer Protection Legislation in the Sphere of Medical Education System as a Course to Achieve Goal of Correct Connection Between Doctor and Patient in Kazakhstan, Central Asia (Discripting Approach). Theoretical & Applied Science. 2015;21(01):126-128. Available from: http://www.t-science.org/arxivDOI/2015/01(21)/01(21)_21.html

    Journal Article
    Brothers Kyle B, Rothstein Mark A. Ethical, legal and social implications of incorporating personalized medicine into healthcare. Personalized Medicine. 2015;12(1):43-51. Available from: https://www.futuremedicine.com/doi/abs/10.2217/pme.14.65

    Book
    Genetic discrimination: transatlantic perspectives on the case for a European-level legal response. Abingdon, Oxon ; New York, NY: Routledge; 2015. Available from: https://www.routledge.com/Genetic-Discrimination-Transatlantic-Perspectives-on-the-Case-for-a-European/Quinn-Paor-Blanck/p/bo...

    Journal Article
    Lane Michelle, Ngueng Feze Ida, Joly Yann. Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors. Journal of Genetic Counseling. 2015;24(6):1022-1036. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1007/s10897-015-9841-9

    Journal Article
    Vives Corrons Joan-Lluis, del Mar Mañú Pereira María, Romeo-Casabona Carlos, Nicolás Pilar, Gulbis Béatrice, Eleftheriou Androulla, et al. Recommendations for Centres of Expertise in Rare Anaemias. The ENERCA White Book. Thalassemia Reports. 2014;4(3):86-90. Available from: https://www.mdpi.com/2039-4365/4/3/4878

    Journal Article
    Prince Anya E. R., Roche Myra I. Genetic information, non-discrimination, and privacy protections in genetic counseling practice. J Genet Couns. 2014;23(6):891-902. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4233176/

    Book Section
    Prince Anya E.R., Watersone M. The Genetic Information Nondiscrimination Act (GINA) of 2008. In: Quinn, Gerard; de Paor, Aisling; Blanck, Peter, editors. Genetic Discrimination: Transatlantic Perspectives on the Case for a European-level Legal Response. 1st. London: Routledge; 2014. p. 300. Available from: https://www.tandfonline.com/doi/full/10.1080/09687599.2015.1075951#:~:text=non%2Ddiscrimination%20regulations.-,Genetic%20Dis...

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    Nicholls Stuart, Joly Yann, Moher Ester, Little Julian. Genetic discrimination and insurance in Canada: Where are we now?. On The Risk. 2014;30:46-52. Available from: https://www.researchgate.net/publication/262138157_Genetic_discrimination_and_insurance_in_Canada_Where_are_we_now

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    Feze Ida, Joly Yann. Can’t Always Get What you Want? Try an Indirect Route you Just Might Get What you Need: A Study on Access to Genetic Data by Canadian Life Insurers. CPPM. 2014;12(1):56-64. Available from: http://www.eurekaselect.com/openurl/content.php?genre=article&issn=1875-6921&volume=12&issue=1&spage=56

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    Joly Yann, Burton Hilary, Knoppers Bartha Maria, Feze Ida Ngueng, Dent Tom, Pashayan Nora, et al. Life insurance: genomic stratification and risk classification. Eur J Hum Genet. 2014;22(5):575-579. Available from: http://www.nature.com/articles/ejhg2013228

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    Lander Jonas, Van Hoyweghen Ine. Streitkultur and the governance of genetic testing and insurance in Germany. New Genetics and Society. 2014;33(1):42-59. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2013.873336

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    Joly Yann, Ngueng Feze Ida, Simard Jacques. Genetic discrimination and life insurance: a systematic review of the evidence. BMC Med. 2013;11(1):25. Available from: http://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-25

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    Rothstein Mark A. Genetic Discrimination in Employment Is Indefensible. Hastings Center Report. 2013;43(6):3-4. Available from: https://onlinelibrary.wiley.com/doi/10.1002/hast.219

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    Hazin Ribhi, Brothers Kyle B., Malin Bradley A., Koenig Barbara A., Sanderson Saskia C., Rothstein Mark A., et al. Ethical, legal, and social implications of incorporating genomic information into electronic health records. Genet Med. 2013;15(10):810-816. Available from: https://www.nature.com/articles/gim2013117

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    Keogh Louise A., Otlowski Margaret F. A. Life insurance and genetic test results: a mutation carrier's fight to achieve full cover. Med. J. Aust.. 2013;199(5) Available from: https://www.mja.com.au/journal/2013/199/5/life-insurance-and-genetic-test-results-mutation-carriers-fight-achieve-full

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    Caulfield Timothy, Chandrasekharan Subhashini, Joly Yann, Cook-Deegan Robert. Harm, hype and evidence: ELSI research and policy guidance. Genome Medicine. 2013;5(3):21. Available from: https://doi.org/10.1186/gm425

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    McClellan Kelly A, Avard Denise, Simard Jacques, Knoppers Bartha M. Personalized medicine and access to health care: potential for inequitable access?. Eur J Hum Genet. 2013;21(2):143-147. Available from: http://www.nature.com/articles/ejhg2012149

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    Prince Anya. Comprehensive Protection of Genetic Information: One Size Privacy or Property Models May Not Fit All. Brooklyn Law Review. 2013;79(1) Available from: https://brooklynworks.brooklaw.edu/blr/vol79/iss1/4

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    Genetic privacy: an evaluation of the ethical and legal landscape. London: Imperial College Press; 2013. Available from: https://www.worldscientific.com/worldscibooks/10.1142/p906

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    Van Hoyweghen Ine, Rebert Lisa. Your genes in insurance: from genetic discrimination to genomic solidarity. Personalized Medicine. 2012;9(8):871-877. Available from: https://www.futuremedicine.com/doi/10.2217/pme.12.96

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    Geelen Els, Horstman Klasien, Marcelis Carlo LM, Doevendans Pieter A, Van Hoyweghen Ine. Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts. Eur J Hum Genet. 2012;20(10):1018-1023. Available from: http://www.nature.com/articles/ejhg201253

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    Bombard Yvonne, Palin JoAnne, Friedman Jan M., Veenstra Gerry, Creighton Susan, Bottorff Joan L., et al. Beyond the patient: The broader impact of genetic discrimination among individuals at risk of Huntington disease. Am. J. Med. Genet.. 2012;159B(2):217-226. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.32016

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    Otlowski M., Taylor S., Bombard Y. Genetic discrimination: international perspectives. Annu Rev Genomics Hum Genet. 2012;13:433-454. Available from: https://www.annualreviews.org/doi/abs/10.1146/annurev-genom-090711-163800

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    Prince Anya E. R., Berkman Benjamin E. When does an illness begin: genetic discrimination and disease manifestation. J Law Med Ethics. 2012;40(3):655-664. Available from: https://journals.sagepub.com/doi/abs/10.1111/j.1748-720X.2012.00696.x

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    Bombard Yvonne, Palin JoAnne, Friedman Jan M., Veenstra Gerry, Creighton Susan, Paulsen Jane S., et al. Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease. Am. J. Med. Genet.. 2011;156(1):19-27. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31130

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    Van Hoyweghen Ine. Taming the wild life of genes by law? Genes reconfiguring solidarity in private insurance. New Genetics and Society. 2010;29(4):431-455. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2010.528190

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    Joly Yann, Braker Maria, Le Huynh Michael. Genetic discrimination in private insurance: global perspectives. New Genetics and Society. 2010;29(4):351-368. Available from: https://www.tandfonline.com/doi/full/10.1080/14636778.2010.528189

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    Otlowski Margaret, Stranger Mark, Taylor Sandra, Barlow-Stewart Kristine, Treloar Susan. Practices and Attitudes of Australian Employers in Relation to the Use of Genetic Information: Report on a National Study. Comparative Labor Law & Policy Journal. 2010;31(4):637-691. Available from: http://heinonline.org/hol-cgi-bin/get_pdf.cgi?handle=hein.journals/cllpj31§ion=40

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    Williams Janet K., Erwin Cheryl, Juhl Andrew R., Mengeling Michelle, Bombard Yvonne, Hayden Michael R., et al. In their own words: Reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study. Am. J. Med. Genet.. 2010;9999B:n/a-n/a. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31080

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    Erwin Cheryl, Williams Janet K., Juhl Andrew R., Mengeling Michelle, Mills James A., Bombard Yvonne, et al. Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND-HD study. Am. J. Med. Genet.. 2010;9999B:n/a-n/a. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.31079

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    Rothstein Mark A. Gina's Beauty is Only Skin Deep. Gene Watch. 2009;22(2):9-12. Available from: https://papers.ssrn.com/abstract=1519975

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    Rothstein Mark A., Cai Yu, Marchant Gary E. Ethical implications of epigenetics research. Nat Rev Genet. 2009;10(4):224-224. Available from: https://www.nature.com/articles/nrg2562

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    Barlow-Stewart Kristine, Taylor Sandra D, Treloar Susan A, Stranger Mark, Otlowski Margaret. Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing.. Genetics in medicine : official journal of the American College of Medical Genetics. 2009;11(3):193-201. Available from: https://www.nature.com/articles/gim200928

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    Rothstein Mark A., Cai Yu, Marchant Gary E. The Ghost in our Genes: Legal and Ethical Implications of Epigenetics. Health Matrix Clevel. 2009;19(1):1-62. Available from: https://asu.pure.elsevier.com/en/publications/the-ghost-in-our-genes-legal-and-ethical-implications-of-epigenet

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    Rothstein Mark A. Putting the Genetic Information Nondiscrimination Act in context. Genetics in Medicine. 2008;10(9):655-656. Available from: https://linkinghub.elsevier.com/retrieve/pii/S1098360021030975

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    Rothstein Mark A. Keeping Your Genes Private. Sci Am. 2008;299(3):64-69. Available from: https://www.scientificamerican.com/article/keeping-your-genes-private

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    Van Hoyweghen Ine, Horstman Klasien. European Practices of Genetic Information and Insurance: Lessons for the Genetic Information Nondiscrimination Act. JAMA. 2008;300(3):326. Available from: http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.2008.62

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    Taylor S., Treloar S., Barlow-Stewart K., Stranger M., Otlowski M. Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet. 2008;74(1):20-30. Available from: https://onlinelibrary.wiley.com/doi/10.1111/j.1399-0004.2008.01016.x

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    McGuire Amy L., Fisher Rebecca, Cusenza Paul, Hudson Kathy, Rothstein Mark A., McGraw Deven, et al. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008;10(7):495-499. Available from: https://www.nature.com/articles/gim200876

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    Penziner Elizabeth, Williams Janet K., Erwin Cheryl, Bombard Yvonne, Wallis Anne, Beglinger Leigh J., et al. Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease. Am. J. Med. Genet.. 2008;147B(3):320-325. Available from: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.b.30600

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    Bombard Yvonne, Penziner Elizabeth, Suchowersky Oksana, Guttman Mark, Paulsen Jane S, Bottorff Joan L, et al. Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease. Eur J Hum Genet. 2008;16(3):279-289. Available from: http://www.nature.com/articles/5201937

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    Rothstein Mark A. Currents in Contemporary Ethics: Is GINA Worth the Wait?. Journal of Law, Medicine & Ethics. 2008;36(1):174-178. Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/currents-in-contemporary-ethics/AA8B630E51...

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    Rothstein Mark A. GINA, the ADA, and Genetic Discrimination in Employment. J Law Med Ethics. 2008;36(4):837-840. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3035561/

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    Otlowski Margaret, Taylor Sandra, Barlowstewart Kristine, Stranger Mark, Treloar Susan. The Use of Legal Remedies in Australia for Pursuing Allegations of Genetic Discrimination: Findings of an Empirical Study. International Journal of Discrimination and the Law. 2007;9(1):3-35. Available from: https://doi.org/10.1177/135822910700900102

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    Van Hoyweghen Ine, Horstman Klasien, Schepers Rita. Genetic ‘Risk Carriers’ and Lifestyle ‘Risk Takers’. Which Risks Deserve our Legal Protection in Insurance?. Health Care Anal. 2007;15(3):179-193. Available from: https://link.springer.com/10.1007/s10728-006-0041-5

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    Otlowski Margaret, Barlow-Stewart Kristine, Taylor Sandra, Stranger Mark, Treloar Susan. Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003.. Journal of law and medicine. 2007;14(3):367-396. Available from: https://proxy.library.mcgill.ca/login?url=https://www.proquest.com/scholarly-journals/investigating-genetic-discrimination-au...

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    Otlowski M, Skene L. Consumer Experiences and Predictive Genetic Testing. In: Stranger, M, editor. Human Biotechnology and Public Trust: Trends, Perceptions and Regulation. Centre for Law and Genetics; 2007. Available from: https://eprints.utas.edu.au/5980/

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    Taylor Sandra, Treloar Susan, Barlow-Stewart Kristine, Otlowski Margaret, Stranger Mark. Investigating Genetic Discrimination in Australia: Perceptions and Experiences of Clinical Genetics Service Clients regarding Coercion to Test, Insurance and Employment. Australian Journal of Emerging Technologies and Society. 2007;5(2):63-83. Available from: https://espace.library.uq.edu.au/view/UQ:134802

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    Otlowski Margaret. ‘Genetic Privacy, Discrimination and Insurance’. In: Disputes and Dilemmas in Health Law. Federation Press; 2006. Available from: https://books.google.ca/books/about/Disputes_and_Dilemmas_in_Health_Law.html?id=61JVEXzkcygC&redir_esc=y

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    Rothstein Mark A., Talbott Meghan K. The Expanding Use of DNA in Law Enforcement: What Role for Privacy?. Journal of Law, Medicine & Ethics. 2006;34(2):153-164. Available from: https://www.cambridge.org/core/journals/journal-of-law-medicine-and-ethics/article/abs/expanding-use-of-dna-in-law-enforcemen...

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    Otlowski Margaret. Use of Genetic Test Information in Life Insurance: An Evaluation of Different Regulatory Models. Journal of International Biotechnology Law. 2005;2(3):99-104. Available from: https://www.degruyter.com/document/doi/10.1515/jibl.2005.2.3.99/html

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    Freishtat R. J., Joly Y., Avard D., Ellenberg M., Knoppers B. M. Genetic Discrimination By Insurers As A Result Of Genetic Research And Testing: A Comparison Of National Policies. J Investig Med. 2005;53(2):S396.2-S396. Available from: https://jim.bmj.com/lookup/doi/10.2310/6650.2005.00205.52

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    Otlowski Margaret. Exploring the concept of genetic discrimination.. Journal of bioethical inquiry. 2005;2(3):165-176. Available from: https://link.springer.com/article/10.1007/BF02448597

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    Barlow-Stewart S., Taylor S., Otlowski M. F. A. Knowing Your Genes. In: Australian Social Attitudes: The First Report. University of New South Wales Press; 2005. p. 204-219. Available from: http://ecite.utas.edu.au/37733

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    Taylor Sandra D, Otlowski Margaret F, Barlow-Stewart Kristine K, Treloar Susan A, Stranger Mark, Chenoweth Kellie. Investigating genetic discrimination in Australia: opportunities and challenges in the early stages.. New genetics and society. 2004;23(2):225-239. Available from: https://www.tandfonline.com/doi/abs/10.1080/1463677042000237053

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    Otlowski Margaret. An exploration of the legal and socio-ethical implications of predictive genetic testing of children.. Australian journal of family law. 2004;18(2):147-169. Available from: https://pubmed.ncbi.nlm.nih.gov/17058338/

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    Knoppers Bartha M., Joly Yann. Physicians, genetics and life insurance. CMAJ. 2004;170(9):1421-1423. Available from: https://www.cmaj.ca/content/170/9/1421

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    Treloar Susan, Taylor Sandra, Otlowski Margaret, Barlow-Stewart Kristine, Stranger Mark, Chenoweth Kellie. Methodological considerations in the study of genetic discrimination.. Community genetics. 2004;7(4):161-168. Available from: https://www.karger.com/Article/Fulltext/82254

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    Genetics and life insurance: medical underwriting and social policy. Cambridge, Mass: MIT Press; 2004. (Basic bioethics). Available from: https://mitpress.mit.edu/books/genetics-and-life-insurance

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    Knoppers Bartha Maria, Lemmens Trudo, Joly Yann, Godard Béatrice, Avard Denise, Clark Teren, et al. Genetics and Life Insurance in Canada: Points to Consider. CMAJ : Canadian Medical Association Journal. 2004;170(9) Available from: https://papyrus.bib.umontreal.ca/xmlui/handle/1866/76

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    Joly Yann, Knoppers Bartha M, Godard Béatrice. Genetic information and life insurance: a ‘real’ risk?. Eur J Hum Genet. 2003;11(8):561-564. Available from: http://www.nature.com/articles/5200998

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    Otlowski Margaret F., Taylor Sandra D., Barlow-Stewart Kristine K. Genetic discrimination: Too few data. Eur J Hum Genet. 2003;11(1):1-2. Available from: https://www.nature.com/articles/5200910

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    Otlowski Margaret. Genetic discrimination: meeting the challenges of an emerging issue.. The University of New South Wales law journal. 2003;26(3):764-769. Available from: https://www.unswlawjournal.unsw.edu.au/article/genetic-discrimination-meeting-the-challenges-of-an-emerging-issue/

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    Otlowski Margaret F, Taylor Sandra D, Barlow-Stewart Kristine K. Major study commencing into genetic discrimination in Australia.. Journal of law and medicine. 2002;10(1):41-48. Available from: https://europepmc.org/article/med/12242882

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    Otlowski Margaret. Genetic Testing and Insurance: The Case for Regulation. Agenda. 2002;9(4):335-354. Available from: https://www.jstor.org/stable/43199221

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    Otlowski Margaret F, Taylor Sandra D, Barlow-Stewart Kristine K. Australian empirical study into genetic discrimination.. Genetics in medicine : official journal of the American College of Medical Genetics. 2002;4(5):392-395. Available from: https://www.nature.com/articles/gim200258

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    Otlowski Margaret. Employers' use of genetic test information: is there a need for regulation. Journal of Law and. 2002;8:1-39. Available from: http://ecite.utas.edu.au/24578

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    Rothstein Mark A., Anderlik Mary R. What is genetic discrimination, and when and how can it be prevented?. Genetics in Medicine. 2001;3(5):354-358. Available from: https://www.gimjournal.org/article/S1098-3600(21)02803-3/fulltext

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    Otlowski Margaret. Avoiding Genetic Discrimination in Insurance: An Exploration of the Legality and Ethics of Precautionary Measures in Anticipation of Unfavourable Test Outcomes. Monash Bioethics Review. 2001;20(1):24–32. Available from: https://philpapers.org/rec/OTLAGD

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    Otlowski Margaret. Implications of genetic testing for Australian insurance law and practice. Hobart, Tas: School of Law, University of Tasmania ; Faculty of Law, University of Melbourne; 2001. (Occasional paper / Centre for Law and Genetics, no. 1). Available from: https://catalogue.nla.gov.au/Record/3424850

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    Margaret Otlowski. Resolving the Conundrum: Should Insurers be Entitled to Access Genetic Test Information?. Insurance Law Journal. 2000;11:193-215.

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    Rothstein Mark A. Genetic Privacy and Confidentiality: Why They are So Hard to Protect. J. Law. Med. Ethics. 1998;26(3):198-204. Available from: https://www.cambridge.org/core/product/identifier/S107311050001305X/type/journal_article

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    Genetic secrets: protecting privacy and confidentiality in the genetic era. New Haven: Yale University Press; 1997. Available from: https://yalebooks.yale.edu/book/9780300080636/genetic-secrets

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    Spain. Spain Publishes Equal Treatment and Non-Discrimination Law, Including Employment-Related Discrimination. JD Supra. 2022. Available from: https://www.jdsupra.com/legalnews/spain-publishes-equal-treatment-and-non-9834347/

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    Beskow Laura M., Wolf Leslie E. “Choice of law” in precision medicine research. The American Journal of Human Genetics. 2022;109(8):1347-1352. Available from: https://www.sciencedirect.com/science/article/pii/S0002929722002622

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    Lencz Todd, Sabatello Maya, Docherty Anna, Peterson Roseann E, Soda Takahiro, Austin Jehannine, et al. Concerns about the use of polygenic embryo screening for psychiatric and cognitive traits. The Lancet Psychiatry. 2022; Available from: https://www.sciencedirect.com/science/article/pii/S2215036622001572

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    Haisman Jack. Does One Size Fit All? Why Our Genes Show the Need for Tailor-Made Solutions. Hastings Law Journal. 2022;73(6):1681. Available from: https://repository.uchastings.edu/hastings_law_journal/vol73/iss6/5

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    Buckenham Boyle Emily. Justice for Our Genes: The Case for Genetic Non-discrimination Regulations in the New Zealand Life Insurance Industry. J Law Med. 2022;29(3):760-782.

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    Wienroth Matthias, Amankwaa Aaron Opoku, McCartney Carole. Integrity, Trustworthiness, and Effectiveness: Towards an Ethos for Forensic Genetics. Genes. 2022;13(8):1453. Available from: https://www.mdpi.com/2073-4425/13/8/1453

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    Dowling Grace, Tiller Jane, McInerney-Leo Aideen, Belcher Andrea, Haining Casey, Barlow-Stewart Kristine, et al. Health professionals’ views and experiences of the Australian moratorium on genetic testing and life insurance: A qualitative study. Eur J Hum Genet. 2022;:1-7. Available from: https://www.nature.com/articles/s41431-022-01150-6

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    Khan Alyna T., Gogarten Stephanie M., McHugh Caitlin P., Stilp Adrienne M., Sofer Tamar, Bowers Michael L., et al. Recommendations on the use and reporting of race, ethnicity, and ancestry in genetic research: Experiences from the NHLBI TOPMed program. Cell Genomics. 2022;:100155. Available from: https://www.sciencedirect.com/science/article/pii/S2666979X22000921

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    Lehmann Lisa Soleymani, Sulmasy Lois Snyder, Burke Wylie, ACP Ethics Professionalism and Human Rights Committee*. Ethical Considerations in Precision Medicine and Genetic Testing in Internal Medicine Practice: A Position Paper From the American College of Physicians. Ann Intern Med. 2022;:M22-0743. Available from: https://www.acpjournals.org/doi/10.7326/M22-0743

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